SOFT Ireland the Support Organisation For Trisomy 13/18 in Ireland is a voluntary group dedicated to providing support, assistance and information for families of children born with Pataus’ Syndrome (Trisomy 13) and Edward’s Syndrome (Trisomy 18). Support is provided during prenatal diagnosis, during the childs’s life and after the child’s passing.  It was formed in 1991. Soft Ireland is run by parents affected by Trisomy 13/18 and related disorders.

SOFT Ireland is funded entirely by members fundraising and public donation and now, more than ever, we need your support to help us continue our work.

There are many ways you can help us raise vital funds – coffee morning, pub quiz, golf classic, bag packing in your local shops, race night, marathon sponsorship, church gate collection…..

Should you be interested in organising an event please feel free to contact any of our fundraising sub-committee who have first-hand experience of organising such events and will be delighted to help with advice and suggestions. We can provide you with t-shirts, sponsorship cards, pens and literature on SOFT Ireland.

The Fundraising Committee contact details are as follows…

Michael Fagan  – contact via

Terry Matthews  – contact via

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