About SOFT Ireland

SOFT Ireland Online

SOFT, the Support Organisation for Trisomy, in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome (Trisomy 18) and related chromosomal disorders. Support is provided during prenatal diagnosis, during the child’s life and after the child’s passing. One in four of all pregnancies end in miscarriage. A high proportion of T13 and T18 pregnancies ends within 12 weeks of conception. It is rare for a pregnancy to continue to full term. The incidence of T13 is approximately 1 in 5,000 of total births, while that of T18 is about 1 in 2,500.

SOFT supports by putting families in contact with one another, providing information, publishing a regular newsletter, organising professional speakers, conferences and family days and maintaining links with SOFT organisations world-wide.

The SOFT booklet, Why My Baby, has been written by parents who had a baby with a T13/18 syndrome or related disorder and contains a significant amount of information on both syndromes.

Why My Baby?

The SOFT booklet has been written by parents who had babies with a Trisomy 13/18 syndrome or related disorder and contains a significant amount of information on both syndromes.

Is available from SOFT and its contents includes · Why Trisomy 13/18 or related disorders · Information on chromosomes · Caring for a baby · Grief · Children and bereavement · Family Stories and Experiences