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# Soft Ireland

S.O.F.T. Ireland Support Organisation For Trisomy13/18

## Sitemaps

- [XML Sitemap](https://www.softireland.com/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [News](https://www.softireland.com/news/)
- [Newsletter 2026](https://www.softireland.com/newsletter-2026/) - SOFT Newsletter 2026 delivered in Aug SOFT Newsletter has been posted to all members since Fri 7th Aug 2026 so it should be in your letterbox by now. Inside is an important letter to all members with Autumn Break details. An Email will go out shortly to Special Families with living children/adults with more details.
- [SOFT Women's Mini Marathon 2026](https://www.softireland.com/womens-mini-marathon-2026/) - The Vhi Women’s Mini Marathon Sunday, May 31st, 2026 Congratulations to all who participated for SOFT Vhi Women’s Mini Marathon CLICK HERE Please Support Ann Kehoe Linda, Martina & Niamh Paula Doyle Caoimhe Martin Good Luck Team SOFT Ireland Sunday 31 May 2026 "We wanted to let you know that the 2026 Vhi Women's Mini
- [Irish Hospice Foundation Support Line](https://www.softireland.com/irish-hospice-foundation-workshops-2026/) - IHF Extends Information and Support Line Opening Hours 1800 60 70 66 Irish Hospice Foundation’s (IHF) Information and Support Line, launched in October 2024, has seen increased demand for information and support around dying, death and bereavement, with a significant rise in public interest in advance care planning through their Think Ahead planning pack. The Information and Support Line provides details of supports
- [Pilot Accessible Beach Mat](https://www.softireland.com/pilot-accessible-beach-mat/) - A new pilot scheme providing accessible beach mats at Ballyloughane and Silverstrand has been launched in Galway City, improving access to the shoreline for wheelchair users, people with mobility difficulties, families with buggies and older people. Galway City Council News The initiative is a collaboration between Galway City Council, Galway Beach Access Group, Galway City
- [Community Foundation News](https://www.softireland.com/s-o-f-t-ireland-awarded-2024-rte-toy-show-appeal-grant/) - Community Foundation News Community Foundation Ireland partners with communities to take on the biggest challenges of our time. As a philanthropic hub entering its 25th year we are committed to continue this work in pursuit of our mission 'Equality For All In Thriving Communities'. In our first 2025 Newsletter I am delighted to
- [In Memory of Zak](https://www.softireland.com/11189-2/) - This in memory of Carol Larkin's beautiful baby Zak who passed away 18 years ago on November 13th from Patau's Syndrome (Trisomy 13). Carol has chosen to fundraise for LauraLynn Ireland's Children's Hospice, The Jack & Jill Children's Foundation and S.O.F.T. Ireland. All funds raised here will go directly to this great causes. You can
- [Old Photo Gallery](https://www.softireland.com/old-photo-gallery/)
- [The Prayer](https://www.softireland.com/the-prayer/) - The Prayer Message from Deirdre Shannon (Official) and myself (Mattieg Gilsenan) to you all. Stay safe and stay positive. A socially distanced duet, from our separate homes this evening, we decided to try out this performance together. "The Prayer", we hope you like it. if you think others might like it, sure give it a
- [Santa Claus is coming to Town](https://www.softireland.com/santa-claus-is-coming-to-town/) - Santa Claus is coming to Town You better watch out You better not cry You better not pout I'm telling you why Santa Claus is coming to town He's making a list, He's checking it twice, He's gonna find out who's naughty or nice Santa Claus is coming to town He sees you when
- [Desperately Seeking Fungie!](https://www.softireland.com/desperately-seeking-fungie/) - SEARCHES for Ireland's most beloved dolphin FIN-ISHED after days without a trace of Fungi's whereabouts. October 2020! "Did you see Funghi?. This above all others is the question everybody asks when they hear you have been to Kerry. Well the answer is YES. SOFT Ireland saw Fungi.Our members marched down to the quayside, hired the
- [Lucy Mulvihill Fundraiser Walk 100K in October](https://www.softireland.com/lucy-mulvihill-fundraiser-walk-100k-in-october/) - Lucy Mulvihill Fundraiser Walk 100K in October A big “Bualadh Bos” to Lucy Mulvihill who is doing a fundraiser for SOFT in memory of her baby brother Ross. She is walking 100k for the month of October and is halfway there. And she is looking for your support... Lucy Mulvihill Go Fund Me Page Lucy
- [Mairead & Timmy O Donovan Echo Fundraiser](https://www.softireland.com/remembrance-6k-for-timothy-for-feileacain-soft/) - Thank You to Mairead included SOFT Ireland in her fundraising drive on GO Fund Me when she completed the The Echo Virtual Mini Marathon in honour of her son Timothy on Sun 20 Sep 2020. "Our beautiful little boy Timothy Joseph came into our world sleeping on the 15th of July 2020 at 32 weeks.
- [Mrs Brown’s Boys D’Musical](https://www.softireland.com/6158-2/) - Mrs Brown’s Boys D’Musical This is a Mrs Brown Comedy with songs. They came up with an idea to stage a musical to help pay their legal expenses in the film. Included in the Brown Family’s journey are Agnes and Buster who are Jason’s favourites. The album of the songs is available on www.mrsbrownsboys.com
- [Special Service of Remembrance Newry](https://www.softireland.com/special-service-of-remembrance-newry/) - Special Service of Remembrance and Thanksgiving for parents and families who have been bereaved through pregnancy loss or the death of a baby, child or young person in Daisy Hill Hospital or the wider community Sunday 3 November 2019 3.00 pm Newry Town Hall Newry Co. Down A floral tribute will be created in
- [Every Life Counts Event](https://www.softireland.com/every-life-counts/) - Pregnancy and Infant Loss Awareness Day Every Life Counts would like to invite you to a Service of Rememberance at St. Mary's Church of Ireland, Dungarvin Co. Waterford. Tuesday 15 Oct 2019 7-8pm Tea and refreshments after service Remembering all babies gone too soon Contact Vicky 087 6716079 Every Life Counts is a
- [South West Acute Hospital Invite](https://www.softireland.com/south-west-acute-hospital-invite/) - Brenda McCabe ,community midwife and Antenatal clinic manager for Omagh and Co.Fermangh contacted SOFT Ireland to make a presentation on Mon 15 Jan 2018. They had an information/study day for staff (Midwives, Nurses, obstetricians and health visitors) on abnormalities in pregnancy in the South West Acute Hospital Irvinestown Road ,Enniskillen, Co.Fermanagh. They had
- [Sligo University Hospital Information Day on Bereavement Services](https://www.softireland.com/sligo-university-hospital-information-day-on-bereavement-services/) - Sligo University Hospital Information Day on Bereavement Services Wed 6th Nov 2019 10am - 02.30pm The End of Life Care Co-ordinator in Sligo University Hospital is in the process of organising an information day for Wednesday November 6th from 10am until 2.30pm for the general public and hospital staff on Bereavement services.
- [Jack Teehan Fundraiser Raffle for SOFT Ireland and Samaritans](https://www.softireland.com/jack-teehan-fundraiser-raffle-for-soft-ireland-and-samaritans/) - Hi everyone from Yvonne Gilbert and Jack Teehan and SOFT Ireland As most of you know by now my beautiful little girl Ayla has both Down syndrome and Edwards' syndrome. When she was born we were told she wouldn't make it gladly she is nearly 7 and is doing amazing proving everyone wrong. Edwards'
- [Easter](https://www.softireland.com/easter/) - Easter Happy Easter to all in SOFT EasterCard On Easter Saturday at 9pm Irish people are being asked to “Shine Your Light” for those who are sick, have lost their lives or their loved ones, care workers and “those who keep us going through these dark times”. It can be a light, candle or even
- [Benefit Night for Jessica](https://www.softireland.com/fundraiser-for-jessica/) - My sister, Jessica, was born with Edwards' Syndrome and sadly passed away on the 18th December 1996. This year would have been her 30th birthday on 10th June 2026, and in her memory my mother and father Rita and Jimmy Kavanagh is organising a benefit night in aid of SOFT Ireland. We are hoping to
- [The AIB Community €1 Million Fund 2026](https://www.softireland.com/the-aib-community-e1-million-fund-2026/) - The AIB Community €1 Million Fund enables customers, the public and employees to support the local charities that matter most to them, within their region. The Fund supports charities across six regions in Ireland, Northern Ireland & Great Britain. AIB will once again allocate €700,000 to charities chosen by its customers and the community, while
- [Seachtain na Gaeilge](https://www.softireland.com/9407-2/) - Fáilte go S.O.F.T. Éireann Eagraíocht Tacaíochta do Trisomy 13/18 S.O.F.T. Is grúpa deonach é Éire atá tiomnaithe do thacaíocht, cúnamh agus faisnéis a sholáthar do theaghlaigh leanaí a diagnóisíodh agus a rugadh le Siondróm Patau (Trisomy 13) agus Siondróm Edwards (Trisomy 18). Is minic a bhíonn coinníollacha tromchúiseacha bagrach don bheatha ag leanaí a
- [Eileen Kelly RIP Sister of Theresa Meehan](https://www.softireland.com/eileen-kelly-rip-sister-of-theresa-meehan/) - SOFT would like to extend their sympathies to Theresa Meehan on the death of sister Eileen Kelly. May she rest in peace. Death Notice of Eileen Kelly (née O’Grady) (Askeaton, Limerick) | rip.ie "The death has occurred of Eileen Kelly (née O’Grady) of Cragmore, Askeaton, Co. Limerick, and formerly of Ballyduff, Co. Kerry. Eileen
- [Happy New Year](https://www.softireland.com/happy-new-year/) - ♥♥♥Happy New Year♥♥♥ Only a night from old to new; Only a sleep from night to morn. The new is but the old come true; Each sunrise sees a new year born. Helen Hunt Jackson, “New Year’s Morning” (1892) ************ ************* Light a Candle for the New Year The New Year is a
- [Silent Night Oíche Chiúin](https://www.softireland.com/silent-night/) - Silent Night Silent Night Carol connects and conveys hope for ordinary people and is sung out around the world as a message of peace. It is a lullaby for the Christ Child a song which evokes many emotions. Christmas and Silent Night is a time to remember our SOFT Children. Simple but moving, ‘Silent Night’
- [Kells to Westport Cycle and Climb Croagh Patrick Reek](https://www.softireland.com/kells-to-westport-cycle-and-climb/) - Cycle and Climb Charity Challenge! 24th/25th July 2025 S.O.F.T. Ireland and Little Blue Heroes SOFT FaceBook LittleBlueHeroes FaceBook LittleBlueHeroes Instagram SOFT Instagram Rooneys Hardware Kells Chadwicks Meath Chronicle WestportWoodsHotel We are thrilled to announce an exciting opportunity to make a difference while embracing adventure—the Cycle and Climb Charity Challenge on
- [Irish Life Dublin Marathon Fundraising 2026](https://www.softireland.com/irish-life-dublin-marathon-fundraising-2026/) - Give2you by Eventmaster is the official fundraising partner in the Irish Life Dublin Marathon on Sun 25thOct 2026! SOFT Ireland has a fundraising page created that is linked to the official fundraising campaign. All funds go directly to SOFT Ireland in real-time so you can have an instant impact while taking part! SOFT Ireland Dublin
- [Dunderry Festive Coffee Morning](https://www.softireland.com/dunderry-coffee-morning/) - Sunday 14th December 2025 From 12pm Yes that time of year again…. Dunderry Coffee morning/afternoon is on Sunday (14th of December) from 12 pm onwards in memory of Derry and Denise forever remembered, forever missed …. there will be mulled wine, mince pies, and other glorious festive calories. lashings of tea, coffee, jams and chutneys
- [Casey's SOFT Charity Fundraiser 2025](https://www.softireland.com/caseys-soft-charity-fundraiser-2025/) - Niamh Holohan Lee’s son Casey Lee passed away with Trisomy 13. He was born sleeping and went straight to heaven. She would like to honour his legacy by hosting a fundraiser for SOFT Ireland. Her friend send her a link to SOFT Ireland. Through that she found the SOFT contact for where she lives and
- [S.O.F.T. Ireland 34th Autumn Break & AGM 2025](https://www.softireland.com/11170-2/) - S.O.F.T. Ireland 34th Autumn Break & AGM 2025 14-16 Nov 2025 Our annual Autumn Break & AGM took place Fri–Sun 14-16 Nov 2025 This year was our 34th celebration and invitations went out to all members with details and it was great to be meet up with everyone on the weekend. Catch up time, coming
- [Michael Whelan RIP brother of Jenny Whelan](https://www.softireland.com/michael-whelan-rip-brother-of-jenny-whelan/) - Michael Whelan RIP brother of Jenny Whelan https://rip.ie/death-notice/michael-whelan-offaly-rhode-609573 SOFT would like to extend their sympathies to Jenny Whelan on the death of brother Michael Whelan Rhode Co. Offaly. May he rest in peace. “Late of St. Patrick's Avenue, Rhode. Unexpectedly at home. Michael will be sadly missed by his wife Josie, daughter Donna, son Dean,
- [MHL Annual Remembrance Service](https://www.softireland.com/11196-2/) - The University Maternity Hospital Limerick’s Annual Remembrance Service, Sunday 2nd November, 2025 @ Our Lady of the Holy Rosary Church, Ennis Road, Limerick at 3pm.The Remembrance Service is an important event for the Maternity Hospital. It is open to all who have experienced pregnancy loss. Those unable to attend in person can watch a live
- [Remembrance NMH 2025](https://www.softireland.com/remembrance-nmh-2025/) - National Maternity Hospital (NMH) Annual Remembrance Service Sun 12th Oct 2025 at 3pm St Andrews Church, Westland Row The National Maternity Hospital’s Annual Remembrance Service will take place on the 12th of October 2025 at 3pm in St Andrews Church, Westland Row, Dublin 2. This service is held annually for the parents and
- [RTE Late Late Toy Show](https://www.softireland.com/rte-toy-show-appeal-no-grant/) - RTE Late Late Toy Show Friday 24 November, 9.35pm Patrick Kielty is getting Toy Show ready, as he preps himself for the biggest night of the year with a little help from the experts. Check out this year’s promo as everyone is invited to Be Toy Show Ready! RTÉ One & RTÉ Player -ISL:
- [SOFT Oct Break & AGM 2017](https://www.softireland.com/exclusive-on-the-soft-october-break-and-agm-fri-to-sun-13-15-oct-17/) - SOFT Oct Break & AGM 2017 October 13th – 15th 2017 Fri. evening was a welcome space for families and new members to get acquainted. Sat. had an opening ceremony, AGM and instead of a guest speaker we had a workshop on “The Future of SOFT” which was great idea and lots to follow up. That
- [Remembrance NMH 2024](https://www.softireland.com/remembrance-nmh/) - National Maternity Hospital (NMH) Annual Remembrance Service The National Maternity Hospital Annual Remembrance Service will take place at 3pm on Sunday the13th of October in St Andrews Church Westland Row, Dublin 2. This service is held annually for the parents and their families whose babies have died. It is a very healing and meaningful experience
- [SOFT Newsletter August 2025](https://www.softireland.com/soft-newsletter-june-2025/) - SOFT Newsletter 2025 August 2025 Finally the SOFT Newsletter 2025 No 52 has dropped through your Letterboxes for this year again. Thanks to all who contributed, supported and/or helped in any way to make it happen. It was an experience in itself to follow it through from start to finish. Here is the process.
- [SOFT Vhi Women's Mini Marathon 2025](https://www.softireland.com/soft-vhi-womens-mini-marathon/) - SOFT Vhi Women's Mini Marathon Congratulations to Paula, Ann and Friends on completing the Dublin City Women's Mini Marathon (WMM) for S.O.F.T. Ireland. It was a great day and Well Done to all. SOFT Ireland are using the IDONATE Platform for the WMM this year as they are their new sponsors. SOFT has a
- [Darkness Into Light 2025](https://www.softireland.com/6906-2/) - Darkness Into Light 2025 Sat May 10th 202​​5 Start Time 4.15 am Sunrise 05:42 am Locations This is the day that hope really started to shine. Lots of People from SOFT took part in "Darkness Into Light" in various places. One sure thing is that everyone was up early to catch the sunrise around
- [HELLO, How Are You?](https://www.softireland.com/hello-how-are-you/) - Hello, How Are You? Thurs 15th May2025 Hello, How Are You? campaign on Thursday 15th May 2025 is about connecting with those around us and engaging in open conversations about mental health. It’s about asking the question, ‘How Are You?’ with meaning, and really listening to the response. The Mental Health Ireland HELLO, How Are
- [SOFT Family Outing Sheerwater Mar 2019](https://www.softireland.com/forever-blowing-bubbles-soft-sheerwater-mar-2019/) - Forever Blowing Bubbles SOFT Sheerwater S.O.F.T Family Outing Sheerwater Hotel Ballinasloe Sunday 31 Mar 2019 Slideshow Click Here Family Outing was a great success. Two new families the Allens and the Donoghues were welcomed. Members were also glad to see the Galloglys and the Moreiras again! Family Bingo conducted by Ann and
- [Coombe Hospital Annual Service of Remembrance 2025](https://www.softireland.com/coombe-hospital-annual-service-of-remembrance/) - Coombe Hospital Annual Service of Remembrance Sunday 27th April 2025 At 3pm Our Lady of Dolours Church Dolphin’s Barn South Circular Road Dublin 8 D08XP94 S.O.F.T Ireland are invited to a moving ceremony in remembrance of babies bereaved at the Coombe Hospital. It will start with a Welcome Address by the Master of the Coombe
- [Family Outing 22 March 2025](https://www.softireland.com/family-outing-sat-30-mar-shearwater-hotel/) - S.O.F.T. Ireland Family Outing Sat/Sun 22/23 March 2025 Hotel Minella Clonmel SLIDESHOW HERE SOFT had their Family Outing in the Four Star Country House Hotel Minella Clonmel on Sat/Sun 22/23 March 2025. The Family Outing did not take place last year but we made up for it this year with lots happening. The Tribute Book,
- [Vhi Women’s Mini Marathon Sun 4th June 23](https://www.softireland.com/vhi-virtual-womens-mini-marathon-sunday-19th-september/) - SOFT Ireland VHI Women's Mini Marathon Sunday 4 June 2023 at 12:30 pm Good Day, Can you believe it's been over two weeks since the SOFT Vhi Women's Mini Marathon? As of today Friday 23 Jun 2023 fundraising is closed on GivenGain for the Vhi WMM 2023 and collectively we have raised €1,432.69 on GivenGain
- [Halloween is Coming](https://www.softireland.com/7446-2/) - Halloween is Coming In Christianity November is devoted to the dead or the“Month of the Dead”. Celebrations occur November 1st All Saints' Day, a tribute to all saints, while November 2nd is All Souls' Day, dedicated to praying for the dead. All Souls Day (November 2) is a time when we particularly remember those
- [SOFT "Stay At Home" Virtual Quizzes](https://www.softireland.com/soft-stay-at-home-virtual-quiz/) - SOFT "Stay At Home" Virtual Quiz!!! Sunday 3rd May at 7pm SOFT Ireland invite their members, families and friends to prepare for THE GREAT STAY AT HOME QUIZ 2020 Here are the Results of the Jury For the Quiz Results Well Done to All Little Buttercup Douze Points Cheyenne Social Club
- [Remembrance Feileacain @ National Maternity Hospital](https://www.softireland.com/sympathies-2/) - Feileacain Remembrance Service December 2017 The Feileacain Dublin Christmas Remembrance Service had a full church on Sunday afternoon in the Unitarian Church, St. Stephen’s Green. Everyone there would have been affected by grief at some stage. A list of babies’ names was read out as well as having a lighted candle procession. One particular candle
- [S.O.F.T. Ireland Appeal for Donations](https://www.softireland.com/s-o-f-t-ireland-appeal-for-donations/) - S.O.F.T. Ireland Appeal for Donations For a limited period of one week SOFT Christmas Cards 2024 were available with four different types of cards in groups of four. This finished Mon 16 Dec 2024. You can still donate to SOFT though through general donate button below or through home page. SOFT Ireland is
- [New Arrivals](https://www.softireland.com/new-arrival-2/) - New Arrival Congratulations to Moya Verling and Tom Power on the birth of their son JJ. Moya looks after our facebook. New Arrival Congratulations to Robbie and Linda O’Shea Donoghue, on the birth of their son Ross recently
- [Website Refreshed - New S.O.F,T Booklet - Tapestry](https://www.softireland.com/website-refreshed/) - Website refreshed November 2008 A New SOFT Ireland website design will be launched on Saturday 8th of November during the 2008 AGM Conference. New S.O.F.T. booklet November 2008 The New SOFT booklet, Why Our Baby?, will be launched on Saturday 8th of November during the 2008 AGM Conference. In Glenroyal Hotel, Maynooth, Co. Kildare *****
- [Anam Cara](https://www.softireland.com/anam-cara-online-bereavement-support-evening/) - Anam Cara Anam Cara Face to Face meeting for North Dublin will be taking place on Wednesday 18th September at 7.15pm in the Hilton Hotel, Clare Hall, Northern Cross, Malahide Rd. The next available online meeting for Anam Cara North Dublin will take place on Thursday 3rd October at 7pm via Zoom. Anam Cara Anam
- [Autumn Break Abbey Court Hotel 2019](https://www.softireland.com/autumn-break-abbey-court-hotel-19-21-oct-18/) - Autumn Break Abbey Court Hotel 18/20 Oct 19 Updated Mon 21st Oct 2019 Precious Precious was the moment of your conception Precious was the moment of our knowing of your beginning Precious was and is your belonging to us and your family and friends Precious was and is your difference Precious was and is your
- [Patrick (Patie) FITZGIBBON RIP](https://www.softireland.com/patrick-patie-fitzgibbon-rip/) - Patrick (Patie) Fitzgibbon RIP Father of Paudie Fitzgibbon Funeral Mon 27 Jan 2025 SOFT Ireland extend our sincere sympathies to Paudie and his family on the death of his father Patie. Paudie is Treasurer of SOFT Ireland. Patrick (Patie) Fitzgibbon, Cahirlane, Abbeyfeale, Co. Limerick, passed away peacefully at University Hospital Limerick on Wednesday, 22nd January
- [A SOFT Christmas is coming](https://www.softireland.com/christmas-greetings-and-light-a-candle/) - Christmas Greetings on Christmas Eve Light a Candle Wishing all our S.O.F.T. families all over Ireland a very Merry Christmas. And also above all else wish them health, wealth and happiness next year as a result. Christmas is a time for remembrance and for instance why not Light a Candle in your own home. Lighting Christmas Greetings on Christmas Eve Light a Candle Wishing all our S.O.F.T. families all over Ireland a very Merry Christmas. And also above all else wish them health, wealth and happiness next year as a result. Christmas is a time for remembrance and for instance why not Light a Candle in your own home. Lighting | #Christmas Greetings on Christmas Eve Light a Candle Wishing all our S.O.F.T. families all over Ireland a very Merry Christmas. And also above all else wish them health, wealth and happiness next year as a result. Christmas is a time for remembrance and for instance why not Light a Candle in your own home. Lighting
- [S.O.F.T. Ireland 33rd Autumn Break & AGM 2024](https://www.softireland.com/s-o-f-t-ireland-33rd-autumn-break-agm-2024/) - S.O.F.T. Ireland 33rd Autumn Break & AGM 2024 08/09/10 Nov 2024 Our annual Autumn Break and AGM took place Fri – Sun 08/09/10 Nov 2024. This year was our 33rd celebration and it took place in the Lady Gregory Hotel, Gort, Co. Galway An invitation went out to all members with details and was great
- [UMHL 2024 Annual Remembrance Service](https://www.softireland.com/umhl-annual-remembrance-service/) - University Maternity Hospital Limerick Annual Remembrance Service Sunday 3rd Nov 2024 At 3pm Church of the Holy Rosary Ennis Road Limerick The Church of the Holy Rosary Ennis Road Limerick Sunday 5th November 2024 at 3pm Every precious life forever remembered and the Remembrance Service is an important event for the Maternity
- [Global Wave of Light 15 Oct @7pm 2024](https://www.softireland.com/4761-2/) - Global Wave of Light Tuesday 15 Oct 2024 7pm Baby Loss Awareness Week finishes each year on October 15 with the global ‘Wave of Light’. October 15 is also International Pregnancy and Infant Loss Remembrance Day and is recognised across the world. SOFT would like to invite you to join with other families and
- [MRHP Service of Remembrance 2024](https://www.softireland.com/9721-2/) - Maternity Department Service of Remembrance Midland Regional Hospital Portlaoise MRHP Service of Remembrance Tues 15th October 2024 at 6pm in St Peter and St Paul’s Church, Portlaoise The service will take place on Tuesday 15th October at 6pm in St Peter and St Paul’s church, Portlaoise, with refreshments afterwards in the adjacent parish centre.
- [AIB Community Fund](https://www.softireland.com/9554-2/) - AIB Community Fund Open Now Closes 12 June 2024 The 2024 AIB Community €1 Million Fund Charities have just been announced but unfortunately S.O.F.T. Ireland didn't make it on this occasion. We were pipped at the post but roll on next year! Congratulations to all the charities nominated in 2024! The work you
- [21KM for 21 Years](https://www.softireland.com/9586-2/) - 21KM for 21 Years Sunday 22 Sept 2024 Baby Patrick Gerard GO TO Eventmaster GiveToYou HERE GO TO RESULTS HERE GO TO IRISH INDEPENDENT REPORT DUBLIN HALF MARATHON PHOTOS Congratulations to Yvonne, Rebecca and all the Team running for S.O.F.T Ireland on Sunday 22 September 2024 in the Dublin Half Marathon in
- [Clontarf Golf Club Charity Day](https://www.softireland.com/clontarf-golf-club-charity-day/) - Clontarf Golf Club Charity Day Sat 07 Sep 2024 Clontarf Golf & Bowling Club had a very successful Captain and Lady Captain's Charity Day on Sat 07 Sep 2024 all in aid of two very worthy charities, the Jack and Jill Children’s Foundation and S.O.F.T. Ireland. They had a 4
- [S.O.F.T. Ireland Newsletter June 2024 No 51](https://www.softireland.com/s-o-f-t-ireland-newsletter-june-2024/) - S.O.F.T. Ireland Newsletter June 2024 No 51 Our Newsletter June 2024 has been posted to all members and has dropped or will be dropping through your letterboxes shortly. It’s in the new A5 style and Full Colour and is filled with information, stories, outings, fundraising, photos and a great deal more. It’s a great way
- [Laura & Adrian Donations to AJ](https://www.softireland.com/adrian-laura-mchale-fundraiser/) - Adrian & Laura McHale Fundraiser for AJ 9th - 25th June Laura and Adrian had the great privilege of being invited to Sligo University Hospital to present our cheques to our three nominated charity organisations totalling €20,717. We were welcomed with open arms and so much love by some of
- [Vhi Women’s Mini Marathon 2024](https://www.softireland.com/9463-2/) - S.O.F.T. Ireland VHI Women’s Mini Marathon now closed Sunday 2nd June 2024 Well Done to everyone for participating!!! GivenGain Fudraising Campaign Page HERE Results 2024 Register HERE for 2025! Teresa, Aoibhín, Ciara, Sinead and Ellen Back Row L-R Deirdre Lambert Susan Treacy Middle Row L-R Laura Fitzgerald Michelle Kinch-Sheehan Jane Hill Niki Conley Front Row
- [Lord Mayor's Community and Voluntary Awards](https://www.softireland.com/lord-mayors-community-and-voluntary-awards-wed-10april2024/) - Cork Lord Mayor's Community and Voluntary Awards Wed 10April2024 Congratulations to S.H.A.R.E .Housing on being the winners on the night in our category. Congratulations to S.O.F.T. Ireland on putting on a great show and to Good Shepherd Services on making it to the final three. We were all winners on the night with
- [Happy Easter](https://www.softireland.com/easter-card-art/) - Happy Easter! We wish SOFT Families all over Ireland a happy and safe Easter in these times Click on Easter Card and print.. Then fold like a Ryanair Boarding Pass, Colour in Bunny and Easter Egg. Easter Card D Family Outing See below Easter Cards from Family Outing March 2019 EasterCard_AA EasterCard_AH11 EasterCard_AR8
- [CUMH Service of Remembrance 15th Oct 2020](https://www.softireland.com/cumh-service-of-remembrance-thursday-15th-oct-from-1030/) - #CUMH Service of Remembrance will be online from 10:30 this Thursday 15th at cumhremembers.ie CUMH invite you to join with them & to share your candle photograph with #CUMHRemembers The service will also air on @RTENewsNow on Thurs 15th 10:30 & Sunday 18th at 14:15 Join with us at
- [S.O.F.T. 29th Virtual AGM 17 Oct. 2020](https://www.softireland.com/s-o-f-t-ireland-29th-virtual-agm-sat-17-oct-2020-at-7pm/) - S.O.F.T. Ireland 29th Virtual AGM Sat. 17 Oct. 2020 at 7pm Dear members The 29th S.O.F.T. Ireland Annual General Meeting will be a virtual one on Saturday 17 October at 7pm in your own home! As you know we had to cancel our Autumn Break due to Covid-19. However we hope to
- [Running in circles 2020!](https://www.softireland.com/running-in-circles/) - Running in circles: Virtual Dublin City Marathon takes place this October Bank Holiday weekend within 5km limit. HSE COVID-19 Information Participants can choose to do the full marathon of 26.2 miles, a four mile run, a 10 kilometre run or a half marathon – all to take place within a five kilometre
- [Zoom Catch Up 13 Dec 2020](https://www.softireland.com/6785-2/) - Zoom Catch Up Sun 13 Dec 2020 Thank you to the families around Ireland who joined our Christmas Catch Up. There were several videos of soloists and instrumentalists, also Christmas poems and Christmas Carols Sing-a-Long led by Dermot Wylie. The children displayed their home made decorations and the adults enjoyed the
- [Kircubbin Integrated Primary School Non Uniform Day](https://www.softireland.com/kircubbin-integrated-primary-school-non-uniform-day/) - Kircubbin Integrated Primary School Non Uniform Day Kircubbin Integrated Primary School hosted a non uniform day for S.O.F.T. Ireland. The children dressed in rainbow colours from SOFT logo on Friday 1 March 2024 to raise funds for SOFT Ireland who help to support one of their own families. Thanks for their generosity and they have
- [Ballivor Coffee Morning Update](https://www.softireland.com/s-o-f-t-coffee-morning-ballivor/) - Ballivor Coffee Morning A coffee morning was held for SOFT in the Community Centre in Ballivor by Hazel Doyle and friends. This was an ideal event on good day Saturday, at a good time 11am to 1pm, for a nice duration of two hours, at good location in the community centre, in a good room
- [Northern Irl SOFT UK Meet Up](https://www.softireland.com/northern-irl-soft-uk-meet-up/) - Northern Ireland SOFT UK Meet Up Date: Sat 10th February 2024 Paula and Alex were invited to go to 2nd Annual Regional Meet up taking place on 10th Feb, at the Corr's Corner Hotel from 1pm to 5pm to network and meet their SOFT UK Northern Ireland families. We were invited by Sonia Sankoli, Communications
- [Sligo Remembrance Service](https://www.softireland.com/sligo-remembrance-rervice/) - A PRAYER SERVICE IN REMEMBRANCE of all Deceased Children, Infants & Pregnancy Loss. SLIGO UNIVERSITY HOSPITAL ON WED 15th NOV 2023 AT 8PM St Anne’s Small Chapel, Cranmore, Sligo, F91 R250. Sligo University Hospital (SUH) is inviting parents and their families who have experienced bereavement, through the death of a baby or child or who
- [Rare Diseases Ireland](https://www.softireland.com/rare-diseases-ireland/) - Rare Disease Patient Forum Expression of Interest Rare Disease Patient Forum to assist in the development of new National Rare Disease Strategy for Ireland Expressions of interest (EOI) are being sought from people living with rare diseases, their family members and the wider rare disease community to contribute to and support development of the
- [Children’s Day Mon, Nov 20, 2023](https://www.softireland.com/childrens-day-mon-nov-20-2023/) - Children’s Day Mon, Nov 20, 2023 Children's Day is celebrated on 20th of November. It’s all about supporting children’s rights and helping children everywhere. World Children’s Day is a day for children, by children. The day is designed to put a spotlight on key issues affecting children and to have a voice All children have
- [S.O.F.T. Ireland 32nd Anniversary Autumn Break & AGM 2023](https://www.softireland.com/32nd-anniversary-s-o-f-t-ireland-autumn-break-agm-2023/) - 32 nd Anniversary S.O.F.T. Ireland Autumn Break & AGM Fri 10/11/12 Nov 2023 Our annual Autumn Break and AGM took place Fri - Sun 10/11/132 Nov 2023. This year was our 32nd celebration and was enjoyable. It took place in the Lady Gregory Hotel, Gort, Co. Galway Due to severe pressures in the Hotel Industry across
- [LIMERICK MINI MARATHON Sun 8th October 2023](https://www.softireland.com/cook-medical-mini-marathon-sun-24th-september-2023/) - COOK MEDICAL MINI MARATHON Sun 08 October 2023 Cook Medical Women’s Mini Marathon welcomes everyone to come together to take part. Located on the grounds of the University of Limerick. There will be people running in aid of SOFT Ireland and are looking for your support This mini-marathon in Limerick, has been
- [CUMH Service of Remembrance](https://www.softireland.com/cumh-service-of-remembrance/) - Cork University Maternity Hospital CUMH Service of Remembrance Sun 15 Oct 2023 Annual Service of Remembrance for Cork University Maternity Hospital which will be on Sunday 15 October at 6pm at the Sacred Heart Church, Western Road, Cork.
- [Luca Joe](https://www.softireland.com/9075-2/) - Luca Joe 15 Sep 2022 To 12 Feb 2023 Liz and John Foley from Chicago USA made a commitment to give their unborn child every opportunity to grow and develop Luca Joe was born September 15th, 2022 with Edwards Syndrome, Trisomy 18. John is originally from Abbeyside, which is on the Waterford side of
- [What is a feature article?](https://www.softireland.com/what-is-a-feature-article/) - What is a feature article? A feature article is an article written to give more depth to topical events, people or issues. A feature story include news features, profiles or spot features. A good feature article contextualizes the story so it’s relatable and immediately relevant to
- [Congratulations Leona and Barry](https://www.softireland.com/congratulations-leona-and-barry/) - Congratulations Leona and Barry The marriage took place in Kells' Church recently between Leona and Barry. Leona is the proud eldest daughter on Patrick and Pauline Farrelly. Patrick is of Farrelly Bros who are a family owned business based in Carnaross, Kells, Co Meath. Congratulations to Leona & Barry
- [Special Birthday Celebration in aid of SOFT](https://www.softireland.com/special-birthday-celebration-in-aid-of-soft/) - Special Birthday Celebration In aid of SOFT Maria Moynihan made a donation on GivenGain to SOFT Ireland direct. Thank you for your generous donation. This is opportune at this particular time and the committee very much appreciate it. The donation was from her recent special birthday celebration and in memory of Danann T18.
- [Celtic Tenors Midsummer Concert](https://www.softireland.com/celtic-tenors-midsummer-concert/) - Celtic Tenors Midsummer Concert On Sat June 17th Deirdre Shannon, The Celtic Tenors with the St Colmcille Church Choir and Special Guests performed a very special Midsummer concert in aid of the Irish Cancer Society and Palliative Care. The Concert took take place in Saint Colmcille's Church Kells County Meath. Full Story in
- [AIB Fund Douze Points](https://www.softireland.com/aib-fund-douze-points/) - AIB Fund Douze Points SOFT Ireland are looking for Douze Points in our AIB Fund Application with closing date Wed 14th June 2023. This is open to everyone to make a nomination to help SOFT Ireland continue its good work with your help. We are asking for your support in
- [The National Maternity Bereavement Experience Survey](https://www.softireland.com/the-national-maternity-bereavement-experience-survey/) - The National Maternity Bereavement Experience Survey The HSE response to the findings of the National Maternity Bereavement Experience Survey 2022 is HERE SOFT Ireland would like to thank everyone involved "A dedicated National Women and Infants Health Programme (NWIHP) was established in 2017 by the Health Service
- [S.O.F.T. Ireland Family Outing Gardening and Art (Feature)](https://www.softireland.com/8789-2/) - S.O.F.T. Ireland Family Outing Gardening and Art (Feature) Remembrance and Living Ceremony on Sunday Morning … Reading of Poems … Memento of terracotta flowerpots & saucers with begonia bulbs. These were painted with names added of special children. Children’s Art by children painting various SOFT themes sketches. “Gardening and Art
- [Vanessa's Coffee Morning Ballyduff Kerry Update](https://www.softireland.com/valentine-coffee-morning-kerry-update/) - Vanessa'sCoffee Morning In aid of S.O.F.T. Ireland Ballyduff Kerry Thurs 16 Feb 2023 10am to 1pm ***** Update Over €3K raised for S.O.F.T. Ireland Charity thanks to BUD’s FRC in Ballyduff Kerryman 23 Feb 2023 “Bud’s Family Resource Centre in Ballyduff were kept busy last Thursday morning as a result
- [Eastenders the BBC Soap Opera and Edwards' Syndrome](https://www.softireland.com/eastenders-the-bbc-soap-opera-and-edwards-syndrome/) - EastEnders BBC1 and RTE1 have emotional Edwards' baby storyline for Whitney and Zack. "Eastenders has been working alongside SOFT UK and Antenatal Results and Choices on a new story which will see Whitney Dean and Zack Hudson’s baby diagnosed with Edwards’ Syndrome." SOFT UK News Also see SOFT Ireland Facebook “Whitney Dean (Shona McGarty) was
- [SOFT UK Family Day Northern Ireland](https://www.softireland.com/s-o-f-t-u-k-family-day-northern-ireland/) - SOFT UK Family Day Northern Ireland Sat 11 Feb 2023 S.O.F.T. Ireland were delighted to receive an invitation to this event on Saturday 11 February in Belfast. Ann Rooney and Paula Doyle travelled north bringing copies of our handbook “Why Our Baby?” and our “Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnosis
- [The John Treacy 10-Mile Run](https://www.softireland.com/8494-2/) - The John Treacy 10-Mile Run Sunday 5th February at 11 am Youghal Road, Dungarvan Update Good weather in Dungarvan today Sun 05 Feb 2023 for the annual John Treacy 10-Mile Run helped Julie, Kate, Moya, Sarah & Triona complete this prestigious event. Congratulations and also Thank You to everyone that donated! It surpassed expectations to
- [Ros Na Rún](https://www.softireland.com/8385-2/) - Ros na Rún Starring Mairtin O’Cathasaigh as Clint Montgomery Congratulations to Mairtin O'Cathasaigh on making his debut in Ros na Rún on Wed 16 Nov at 8.30p.m.on TG4. Mairtin and his parents Margaret & Liam Casey are a big part of our SOFT Family and SOFT is a big fan of Ros
- [Bereaved Children’s Awareness Week 2022](https://www.softireland.com/7204-2/) - Bereaved Children’s Awareness Week 2022 14 - 18 November 2022 Every November, the Irish Childhood Bereavement Network (ICBN) organise a series of events across Ireland to highlight bereaved children’s needs and provide a voice for them to be heard. Children are the “hidden mourners” in our society they feel the loss over a lifetime, and
- [SOFT Ireland Melbourne Marathon 2022](https://www.softireland.com/soft-ireland-melbourne-marathon-2022/) - Melbourne Marathon 2022 Sunday 2 October 2022 42.195km Good Luck to Michael in the Melbourne Marathon. Estimated Start Time in Irish Time Sat 01 Oct 2022 21:00 Congratulation to Michael Rooney on finishing the Melbourne Marathon. Well Done on raising funds for SOFT! See result HERE This cause will close in 7 days Start
- [Pre-Natal Diagnosis Support & Information Leaflet](https://www.softireland.com/pre-natal-diagnosis-support-information-leaflet/) - Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnosis Support & Information Leaflet Our revised Leaflet was launched at our Autumn Break/AGM on 8th October 2022. This followed the revision of our handbook “Why Our Baby?” Under the heading “When You Receive the Diagnosis” we recommend looking at the “Pathway for the Management of Fatal
- [31st Anniversary S.O.F.T. Ireland Autumn Break & AGM](https://www.softireland.com/8116-2/) - 31st Anniversary S.O.F.T. Ireland Autumn Break & AGM Fri 7/8/9 Oct 2022 It’s that time of year again for our annual Autumn Break. As many of you informed us that last year's 30th celebration in the Talbot hotel was very enjoyable and met a lot of our groups needs we were
- [GivenGain Campaign for SOFT Pre Natal Leaflet Appeal](https://www.softireland.com/givengain-campaign-for-soft-pre-natal-leaflet-appeal/) - GivenGain Campaign for S.O.F.T. Ireland Pre Natal Leaflet Please Donate €20 And Request FREE Complimentary Copy of "Why Our Baby?" This campaign in now paused and thank you for you for your donations and cooperation SOFT Ireland is appealing to the General Public to show your support with a small donation (€20) to our charity
- [Yvonne & Ayla on Virgin Media News](https://www.softireland.com/8027-2/) - Yvonne & Ayla on Virgin Media News Wed 17 Aug 2022 @ 5.30p.m. Watch it back on the link below.14 minutes in. Virgin Media Television Player https://www.virginmediatelevision.ie/player/show/1513/0/0/ Yvonne & Ayla as well as "Children in Hospital Ireland" are calling for a new social protection payment in Budget to assist parents who
- [Mercury Lilliput Legend Adventure Race 16 July](https://www.softireland.com/mercury-lilliput-legend-adventure-race/) - Mercury Lilliput Legend Adventure Race Congratulations to Mercury Team participating Saturday 16 July This charity cause is now closed. Thank you all for everything, See Location This cause will close Sun 31 July 2022. S.O.F.T. Ireland would like to thank everyone who donated, participated and contributed to make this event a success. See GivenGain Cause
- [Sunday Mirror Sun 03 April 2022](https://www.softireland.com/sunday-mirror-sun-03-april-2022/) - Sunday Mirror Sun 03 April 2022 There is an article by Rita Kavanagh longtime SOFT Member in the Sunday Mirror Sun 03 April 2022. She is writing about her daughter Jessica who was born with Edwards’ Syndrome (Trisomy 18). She lived for 6 months approximately. Irish Mirror Sun 3 Apr 2022 "A heartbroken mum is
- [Census 2022 Time Capsule and Baby Loss](https://www.softireland.com/census-2021-and-baby-loss/) - Census 2022 Time Capsule and Baby Loss SOFT member Niamh Connolly Coyne lost her daughter Mia Rose before birth. She has championed a change in Census 2022 which allows families to acknowledge their loss. Your Census 2022 household form has a new feature – the Time Capsule At 32 weeks pregnant Niamh and her
- [Sphere17 Christmas Market](https://www.softireland.com/7496-2/) - Sphere17 Christmas Market Held Thurs 9th December 2021 Thanks to Carol and Sphere17 for nominating SOFT Ireland and inviting us along to their wonderful market in aid our SOFT Children. It was a great day with lots of Wooden Crafts, Jewellery, Baking, Food Stalls and not forgetting Santa’s Grotto. They also had a raffle. A
- [Public Library Services](https://www.softireland.com/public-library-services/) - Public Library Services Public Library Services ***** Local authorities operate a network of public libraries and are open to everyone and most of their services are free. To become a library member you need to: Go to Library Services in Ireland | Libraries Ireland Fill
- [Why Our Baby? Pre Natal Diagnosis](https://www.softireland.com/why-our-baby-pre-natal-diagnosis/) - Why Our Baby? Pre Natal Diagnosis Why Our Baby? Pre Natal Diagnosis We have revised our handbook “Why Our Baby?” and it will be printed in the near future. Chapter 5 Pre Natal Diagnosis including Diagnostic Tests has been revised and the following is our summary diagram. Pathway for Management of Fatal Fetal Anomalies/Life
- [An impressionist painting Autumn Break 2021](https://www.softireland.com/an-impressionist-painting-autumn-break-2021/) - An impressionist painting Autumn Break 2021 An impressionist painting by a young person at the SOFT Ireland Autumn Break last weekend. The picture depicts a collections of flowers and wild life in a garden and can be interpreted as a representation of the transience of youth and beauty, The clue
- [Roderic O'Gorman launches "Why Our Baby" Book](https://www.softireland.com/roderic-ogorman-launches-why-our-baby-book/) - Roderic O'Gorman Launches SOFT Ireland "Why Our Baby Book" Roderic O’Gorman (Minister for Children, Equality, Disability, Integration and Youth) was honoured to speak at the Support Organisation for Trisomy (SOFT) Ireland 30th Anniversary and launch their ‘Why Our Baby” book. He is a Teachta Dála (TD) for the Dublin West constituency since 2020.
- [S.O.F.T. Ireland 30th Anniversary Autumn Break/AGM](https://www.softireland.com/s-o-f-t-ireland-30th-anniversary-autumn-break-agm/) - S.O.F.T. Ireland 30th Anniversary Autumn Break/AGM The 30th S.O.F.T. Ireland Annual General Meeting took place on Saturday 16 October in the Talbot Hotel Carlow. Thank You all for supporting AGM 2021. The new committee was elected with Ann Rooney as Chairperson. We had a good turnout on Saturday 16 October 2021
- [30th Anniversary S.O.F.T Ireland  Autumn Break](https://www.softireland.com/30th-anniversary-s-o-f-t-ireland-autumn-break/) - 30th Anniversary S.O.F.T. Ireland Autumn Break Fri 15/16/17 Oct 2021 Talbot Hotel Carlow Portlaoise Road, Carlow, Ireland Hotel Phone Number 059 9153000 Website https://www.talbotcarlow.ie/ A letter has gone out to all members with details. Looking forward to meeting up with everyone on the weekend
- [Half Ironman Triathlon in aid of SOFT Ireland](https://www.softireland.com/half-ironman-triathlon-in-aid-of-soft-ireland/) - Half Ironman Triathlon in aid of SOFT Ireland Denise Devlin is a SOFT Ireland member and has done a Half Ironman Triathlon in aid of SOFT Ireland in memory of her son Zakk on Sunday 15th August/ Congratulations Denise "You made it" "In memory of Zakk... 70.3 miles for SOFT... Thanks to everyone
- [Pregnancy and Infant Loss Ireland](https://www.softireland.com/pregnancy-and-infant-loss-ireland/) - Pregnancy and Infant Loss Ireland A team of healthcare professionals have spent the last two years working on the implementation of the National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death. One of the outputs and the culmination of the two years’ work was the launch
- [Termination for Edwards' and Patau's Syndrome - A Life Limiting Condition](https://www.softireland.com/termination-for-edwards-and-pataus-syndrome-a-life-limiting-condition/) - Termination for Edwards' Syndrome and Patau's Syndrome A Life Limiting Condition When a woman receives a diagnosis of Edwards' T18 or Patau's Syndrome T13 for her baby we term this a life limiting condition as these babies could live for a few hours, days, weeks, months etc. They have an
- [UCC Study of Diagnosis of Fatal Fetal Abnormality/Life Limiting Condition in ROI during 2019](https://www.softireland.com/ucc-study-of-diagnosis-of-fatal-abnormality-life-limiting-condition-in-roi-during-2019/) - UCC Study of Diagnosis of Fatal Fetal Abnormality/Life Limiting Condition in ROI during 2019 Have you experienced a diagnosis of a fatal fetal anomaly/life-limiting condition in the Republic of Ireland during 2019? If so, we would like to hear about yourexperience. We are a group of researchers from the Pregnancy Loss Research Group at
- [Florence and NMH Foundation](https://www.softireland.com/florence-and-nmh-foundation/) - Florence and NMH Foundation The Story Beautiful daughter of Sinead and William Thavenot named Florence, was born on Monday 1 February 2021. Sadly, she never got to take a breath or open her eyes. The wind is entirely taken from you, the mind at once numb to the magnitude of what has
- [Rotunda Gynaecology](https://www.softireland.com/rotunda-gynaecology/) - Rotunda Gynaecology Opened March 2021 A new unit of the Rotunda Hospital campus has now opened. Known as Rotunda Gynaecology since last march. The state-of-the-art unit will to reduce waiting lists. It is funded under the National Woman and Infants Health programme. This new unit caters for patients
- [Loss in a Multiple Pregnancy: A guide for staff](https://www.softireland.com/loss-in-a-multiple-pregnancy-a-guide-for-staff/) - Loss in a Multiple Pregnancy A Guide for Staff By Niamh Connolly Loss in a Multiple Pregnancy. A Guide for Staff ... By Niamh Connolly Our SOFT Member Niamh Connolly has launched a new online booklet called Loss in a Multiple Pregnancy: A Guide for Staff. Over the last two
- [Recent Fundraising Events for SOFT](https://www.softireland.com/recent-fundraising-events-for-soft/) - Fun Quiz for Rachel's 18th Anniversary Debbie O'Flaherty organised a Fun Quiz for relatives and friends in memory of her daughter Rachel's 18 Anniversary in February 2021. She donated half the proceeds to SOFT and the other half to A Little Lifetime another good cause. 100K Walk Sophie Belle and her mum Nicola
- [Vicky talks to Yvonne and Ayla](https://www.softireland.com/vicky-talks-to-yvonne-and-ayla/) - Yvonne and Ayla Talk to Vicky Vicky from Every Life Counts talk to Yvonne and Ayla on 21 March 2021 “How lucky are we to get to chat to these two beauties!” World Trisomy Day we talk to Yvonne mum to Ayla who has Trisomy 21
- [SOFT Zoom Family Event Trisomy 13 Trisomy 18](https://www.softireland.com/6994-2/) - SOFT Zoom Family Event Sat 20 March 7pm Thank you to all the families who took part and to everyone that helped organise things on the night. Including the Quiz What would the Tie Breaker have been On what page of Google is softireland.com if you searched for "Trisomy 18" Answers on a postcard if
- [Operation Transformation 5K](https://www.softireland.com/6876-2/) - The Operation Transformation 5K in association with Athletics Ireland and Sport Ireland is back! Thursday, Friday and Saturday, 18th 19th and 20th February It's Free On Thursday, Friday and Saturday, the 18th 19th and 20th of February, we are inviting you to take part this year by participating in a VIRTUAL OT 5K. You MUST
- [SOFT Support For Adam](https://www.softireland.com/soft-support-for-adam/) - The six-year-old boy from Co Cork, whose 'virtual hug' provided one of television's most memorable moments last year, is set to see it light up buildings across the country tonight. Adam King's virtual hug sign, which he first shared with Late Late Toy Show host Ryan Tubridy, will be displayed at locations in Dublin, Cork

## Pages

- [Home New](https://www.softireland.com/) - S.O.F.T. Ireland is a voluntary group providing support to families of children diagnosed with Patau’s Syndrome (Trisomy 13) & Edwards’ Syndrome (Trisomy 18).
- [Fundraising](https://www.softireland.com/fundraising-2/) - S.O.F.T Ireland The Support Organisation for Trisomy 13 and Trisomy 18 Fundraising 2025 Charity Reference Number (CHY) 10554 Registered Charity Number (RCN) 20027094 Donations We now have a DONATE button on our front page and on our website which makes it very easy for people to give us much needed funds. This is ideal
- [Fundraising2025](https://www.softireland.com/fundraising2025/) - Fundraising2025 Dunderry Festive Coffee Morning Sunday 14th December 2025 From 12pm Yes that time of year again…. Dunderry Coffee morning/afternoon was on Sunday (14th of December) from 12 pm onwards in memory of Derry and Denise forever remembered, forever missed …. there was mulled wine, mince pies, and other glorious festive calories. lashings of tea,
- [Contact Us](https://www.softireland.com/contact-us/) - S.O.F.T Ireland Contact Co-ordinator Name: Carol Kinsella Email: info@softireland.com DM her on S.O.F.T. Facebook Freephone Number 1800 213 218 is currently down. S.O.F.T. Ireland Chairperson Name: Alex Doyle Email: soft.chairperson@gmail.com S.O.F.T. Ireland Secretary Name: Louise Lovett Email: soft.secretary1@gmail.com S.O.F.T. Ireland Treasurer Name: Paudie Fitzgibbon Email: soft.treasurer@gmail.com S.O.F.T. Information Officer Name: Elizabeth & Daniela Fitzgibbon Email: soft.informationofficer@gmail.com S.O.F.T. Fundraising
- [Library](https://www.softireland.com/library/) - Public Library Services Local authorities in Ireland operate a network of public libraries and are open to everyone and most of their services are free. To become a library member you need to: Go to Library Services in Ireland | Libraries Ireland Fill out the application form online or at any branch.
- [RIP](https://www.softireland.com/rip-2/) - Eileen Kelly RIP Sister of Theresa Meehan Feb 2026 SOFT would like to extend their sympathies to Theresa Meehan on the death of sister Eileen Kelly. May she rest in peace. "The death has occurred of Eileen Kelly (née O’Grady) of Cragmore, Askeaton, Co. Limerick, and formerly of Ballyduff, Co. Kerry. Eileen passed away peacefully
- [Links](https://www.softireland.com/information/links/) - Links to other websites These links are for information only and are not an endorsement of any group.We have no control over the nature, content and availability of those sites. S.O.F.T. Ireland does not necessarily imply a recommendation or endorse the content of these sites. HSE COVID-19 Information ****** SOFT Ireland Facebook See the latest
- [Slideshow/Gallery](https://www.softireland.com/slideshowgallery/) - New: Lady Gregory Gort November 2025: New: Lady Gregory Gort November 2025: Old: Hotel Minella Family Outing March 2025: Old: Hotel Minella Family Outing March 2025:
- [Slideshow/Gallery Extra](https://www.softireland.com/slideshow-gallery-family-outing-gort/) - Extra Extra
- [Information](https://www.softireland.com/information/) - Pre-Natal Diagnosis Leaflet 2022 Why Our Baby? Standards for Bereavement Care Loss-in-a-Multiple-Pregnancy
- [Features](https://www.softireland.com/features/) - Below are some recent featured news posts:
- [Candles](https://www.softireland.com/candles/) - Below are a list of names and events for which Candles were lit. You can light a candle HERE.
- [Accessibility Statement](https://www.softireland.com/accessibility-statement/) - Accessibility Statement Soft Ireland is committed to ensuring digital accessibility for people with disabilities. We are continually improving the user experience for everyone and applying the relevant accessibility standards. Conformance status The Web Content Accessibility Guidelines (WCAG) defines requirements for designers and developers to improve accessibility for people with disabilities. It defines three levels of
- [Bereavement & Children](https://www.softireland.com/information/bereavement-children/) - Bereavement & Children Children are always affected by a death in the family. Each child will grieve differently, depending on their age, maturity, personality, and experience. Even very young children will realise that something is happening in their family. Various problems may emerge with your children. For example some children may develop vague physical
- [About Us](https://www.softireland.com/about-us/) - SOFT Ireland Registered Charity Number (RCN) 20027094 Charity Reference Number (CHY) 10554 The SUPPORT ORGANISATION FOR TRISOMY (S.O.F.T.) was founded in Ireland in 1991 as a voluntary group dedicated to providing support for families of children diagnosed and born with the chromosomal disorders – Patau’s Syndrome or Trisomy l3 and Edwards’ Syndrome or Trisomy
- [How can we help?](https://www.softireland.com/information/how-we-can-help/) - How does S.O.F.T. Ireland help families? S.O.F.T. Ireland provides support by : Providing information e.g. “Trisomy 13/18 Pre-Natal Diagnostic Support and Information Leaflet” and “Why Our Baby” Book Putting families in contact with one another Funding home and family support Funding respite assistance Funding bereavement counselling Publishing regular newsletters Organising conferences and arranging professional speakers
- [Rainbows](https://www.softireland.com/rainbows/) - Rainbows Rainbows would never be rainbows If sunshine had never met rain. No one would ever need comfort If there were no sadness and pain. But life holds both sunshine and showers The days aren't all bright and fair. So look through the showers for the rainbows You'll always find hope shining there. Anonymous
- [Family Stories Trisomy 18](https://www.softireland.com/family-stories-trisomy-18/) - Add your own Story
- [Denise](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/denise/) - Mary & Derry O’ Brien Denise 02/07/86 – 31/01/08 Edward’s Syndrome Denise celebrating her 21st birthday Living with Dolly At the AGM in Portlaoise, 2003 I spoke of life with my sister Dolly who had Edward’s Syndrome and whose being had changed our lives forever, this is a shortened version of that story……………….. I’ve always
- [Leah](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/leah/) - Fiona & John Hennessy Leah 25/9/05 - 5/11/05 Edward’s Syndrome Leah was born on the 25th September, 2005 she weighted 4lbs 2 ozs by selective c section, as I had an emergency section with my other child Cian and I didn't want to go through that again. I had no problem with the pregnancy I
- [Louise](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/louise/) - Martina and Frank O’Reilly Louise 31/08/89 (D) Edward’s Syndrome In 1989, our only daughter, Louise died. In many ways it seems like only yesterday and in other ways it all seems more like a nightmare we dreamt - many years ago. Frank and I were living in London - we had our first home together,
- [Site Map](https://www.softireland.com/site-map/)
- [Terms & Conditions](https://www.softireland.com/terms-conditions/) - Please read this document before accessing the SOFT Ireland website. By accessing the SOFT Ireland website, you agree to be bound by the following terms and conditions. If you do not accept these terms and conditions, do not use this website. Acceptance SOFT Ireland provides the website to you on the basis of the following
- [Privacy Policy](https://www.softireland.com/privacy-policy/) - If you choose to register on any part of this SOFT Ireland Website, you agree to provide SOFT Ireland with the accurate data as requested in the registration form. For details of our use and transfer of your personal data, please refer to this privacy policy. - The information provided in a form or otherwise
- [Disclaimer](https://www.softireland.com/disclaimer/) - SOFT Ireland hereby excludes all conditions, warranties, representations or other terms concerning the supply or purported supply of, failure to supply or delay in supplying any service in connection with the SOFT Ireland Website or that the SOFT Ireland Website is accurate, complete or up-to-date, which might but for this Section 4 have effect between
- [Ellen](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/ellen/) - Geraldine and Terry Matthews Ellen 19/08/96 Edward’s Syndrome Our daughter Ellen was born in August 1996 weighing 3lb 10ozs. We were sad and shocked to find out that our new baby had Edwards Syndrome and to hear of all the physical and mental disabilities she would have. But all of this was put into perspective
- [Patrick and Niall](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/patrick-and-niall/) - Patrick Pauline & Patrick Farrelly Patrick 17/01/03 – 14/10/03 Edward’s Syndrome Niall Mary & Danny Rispin Niall 06/09/02 - 03 /06/03 Edward’s Syndrome Maria Moynihan of the Irish Farmers Journal met 2 S.O.F.T. families. This is her report on her interviews with the Farrellys and the Rispins. The Rainbow Children Baby Patrick with his parents
- [Kate](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/kate/) - Allison and Kevin Donohue Kate 08/04/99 – 09/04/99 Edward’s Syndrome The 29th March 1999 is a day I will always remember, I was having a deep scan done by the scan specialist in the Rotunda. At a previous scan they had told us that the baby’s abdomen had stopped growing. We had an appointment at
- [Darren](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/darren/) - Ellen and Brian Mulvihill Darren 13/05/01 – 25/08/01 Edward’s Syndrome It's difficult to confine Darren's little life to this short story even more difficult to imagine life before Darren. He is never more than a thought away and is spoken of every day. His little face with those beautiful blue eyes and those blow bubble
- [Karl](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/karl/) - Helen and Pat Lawlor Karl 05/01/01 – 04/03/01 Edward’s Syndrome Our beautiful Karl was born on January 5th, 2001, at 1.53 pm at the Rotunda Hospital, Dublin. He was born when I was 37 weeks pregnant and weighed 3lbs 14 oz. We got a shock at first and both thought he was just small for
- [David](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/david/) - Helen Doherty & John Shine David 12/10/00 – 14/10/00 Edward’s Syndrome Our story began on 11th October 2000. I was almost full term in an uneventful pregnancy, due in 11 days and counting every minute. We already had a little girl, Meabh, age 2 years and 2 months. I went in for a routine scan
- [Feeding and Digestion](https://www.softireland.com/why-our-baby/feeding-and-digestion/) - Why Our Baby? FEEDING AND DIGESTION Like other babies, some Trisomy babies will breastfeed and some won’t. Equally, some will bottle feed, but some won’t. For those who do feed, because of their floppy/hypotonic airway or poor coordination they may have to work much harder and slower at doing so and they may be more
- [Elaine](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/elaine/) - You have a sister !!! The happiest words I could have heard I had spent so much time praying that I would get a sister and not another brother, I would have been 10 then…….. I will never forget the day Dad came home and told us we had a sister, it was a lovely
- [Michael](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/michaels-story/) - Margot & Michael Curtin Michael 08/03/06 (D) Edward’s Syndrome Hello there. My name is Michael Finbarr Con and although my Mammy and Daddy live down there on earth and I am up here in Heaven, we are always together. I’m with them every day, from the moment they wake up in the morning until they
- [Elaine - A Ray of Light](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/elaine/elaine-a-ray-of-light-2/) - A Ray of Light Elaine Fagan was born on a lovely sunny day in March 1986, a beautiful daughter for Kay and Michael of Garden Hill, Castleconnell and a welcome and much awaited sister for Nicola 10, David 7 and Brian 4. The initial joy an delight at Elaine's arrival however turned to anxiety and
- [Annalucia](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/annalucias-story/) - Annalucia Born to Heaven 27/05/09 September Hey everybody, I’m here. Mommy & Daddy don’t even know yet. They’ve been trying to make me & now here I am and they don’t even know it. What can I say? I guess I’m still too small for them to notice me. Mommy is
- [Photographers](https://www.softireland.com/information/photographers/) - Now I Lay Me Down to Sleep (NILMDTS) Now I Lay Me Down to Sleep (NILMDTS) is a not for profit organisation which offers bereaved, or soon to be bereaved, parents the gift of the services of a professional photographer to create lasting images of their baby. These services are available for infant loss as
- [Light A Candle](https://www.softireland.com/light-a-candle/) - Add a message and light a candle for your child here:
- [Preya May](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/preya-may/) - I have a picture of you in my head, you have dark hair cut in a bob with big blue eyes, you look like your daddy with chubby cheeks and a smile that would melt anyone's heart. There isn't a day that passes we don't think of you. Our beautiful baby girl, born asleep on
- [Noah](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/noahs-story/) - Anita Conlon writes about her and Darren’s journey with baby Noah Darren and I were overjoyed to discover I was pregnant with our second child. It had been a tough year as my mother was diagnosed with breast cancer but when she got the all clear in April 2016 we decided to try for
- [Danann](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/danann/) - Danann Atlas Riordan: A wild and precious life By Maria Moynihan One of the very first articles I wrote as a newly qualified journalist in 2005 was about the support that SOFT Ireland gave the Rispin and Farrelly families when their sons, Niall and Patrick, were diagnosed with Edwards’ Syndrome. You can actually
- [Why Trisomy 13 or 18?](https://www.softireland.com/why-our-baby/why-trisomy-13-or-18/) - Why Our Baby? WHY TRISOMY 13 or 18? Babies have been born with Trisomy 13 and Trisomy 18 since the beginning of time, but it was only in 1960 that Dr Patau and Dr Edwards identified the individual features of these syndromes. Both syndromes are the result of an extra l3th or l8th chromosome, respectively,
- [Children and Bereavement](https://www.softireland.com/why-our-baby/children-and-bereavement/) - Why Our Baby? CHILDREN AND BEREAVEMENT The death of a baby before, during or shortly after birth is a major bereavement for the whole family. It has an impact on children who were looking forward to having a new brother or sister and also on children born after a baby has died. Children are always
- [Special Care Baby Unit](https://www.softireland.com/why-our-baby/special-care-baby-unit/) - Why Our Baby? SPECIAL CARE BABY UNIT Some babies are cared for in the Special Care Baby Unit (SCBU) following delivery when they require additional care and support. The SCBU can be a frightening place with incubators for tiny babies, monitors, tubes and other equipment. The SCBU is staffed by specially trained children’s nurses and
- [The Heart](https://www.softireland.com/why-our-baby/the-heart/) - Why Our Baby? The Heart HOW THE NORMAL HEART FUNCTIONS The heart is like a pump, which pumps blood around the body. Described below is one complete cycle of blood flow through the heart. Fig 1. shows a diagram of the heart. The blood flows into the heart from the lungs and enters the left
- [Glossary](https://www.softireland.com/why-our-baby/glossary/) - Why Our Baby's GLOSSARY OF MEDICAL TERMS This glossary has been compiled as an aid to understanding the complex medical terminology associated with Patau's Syndrome and Edward’s Syndrome. The glossary should only be used for the clarification of information already provided by a doctor. If any item raises questions in the mind of parents,
- [How Long Will My Baby Live?](https://www.softireland.com/why-our-baby/how-long-will-my-baby-live/) - Why Our Baby? HOW LONG WILL MY BABY LIVE? Trisomy 13 and 18 are both associated with a high risk of mortality and, therefore, affect how long a baby is expected to survive. The longer the pregnancy lasts, the greater the chance of your baby being born alive. Sadly, however, the chances of your baby
- [A Double Sorrow](https://www.softireland.com/why-our-baby/a-double-sorrow/) - Why Our Baby? A DOUBLE SORROW For parents who give birth to a baby with severe disabilities, the grieving process may need to be completed twice. The first period of grieving begins when your baby is born and you mourn the baby you expected but did not have. Grieving at the death of your baby
- [When Your baby Lives](https://www.softireland.com/why-our-baby/when-your-baby-lives/) - Why Our Baby? WHEN YOUR BABY LIVES While we’re conscious that this chapter will not be relevant to all families, in some situations our Trisomy 13/18 babies do stay with us longer than we may have thought at their birth. It is, therefore, worth giving some consideration to the information contained below. Please be mindful
- [Pre-Natal Diagnosis](https://www.softireland.com/why-our-baby/pre-natal-diagnosis/) - Why Our Baby? Pre-Natal Diagnosis Why Our Baby? Pre-Natal Diagnosis PRENATAL DIAGNOSIS All women, in Ireland, have access to ultrasound services, which can assess their baby for problems or anomalies. Around 2-3% of pregnancies do have some congenital anomalies and of this a small number are life-limiting, meaning that there is a condition present affecting
- [When Your Baby is Born](https://www.softireland.com/why-our-baby/when-your-baby-is-born/) - Why Our Baby? WHEN YOUR BABY IS BORN YOUR FEELINGS AT THIS TIME Parents are understandably upset when a chromosomal disorder is diagnosed. You were looking forward to experiencing the joys of motherhood or fatherhood, and now there are multiple problems to face, along with the threat of your baby's death hanging over you. Sometimes,
- [Trisomy 13/18 Chromosomes](https://www.softireland.com/why-our-baby/trisomy-1318-chromosomes/) - Why Our Baby? TRISOMY 13/18 CHROMOSOMES This chapter sets out to outline the science of chromosomes and give the reader some information on chromosomes and how they are relevant for our Edwards’ T18 and Patau T13 babies. Chromosomes are tiny structures inside cells made from DNA and protein. The information inside chromosomes acts like a
- [Having Another Baby](https://www.softireland.com/why-our-baby/having-another-baby/) - Why Our Baby? HAVING ANOTHER BABY Although the risk of it happening again is very low, the fear of having another baby with Patau's Syndrome or Edwards' Syndrome is great among parents. To ease your fears, discuss with your obstetrician, it is also helpful to seek the advice of a genetic counsellor on the risk
- [When Your Baby Dies](https://www.softireland.com/why-our-baby/when-your-baby-dies/) - Why Our Baby? WHEN YOUR BABY DIES If your baby dies before birth You may find out from a scan, an examination or you may know yourself, that your baby has died within. But no matter how you find out, nothing can prepare you for the shock and the total disbelief of what is happening
- [ArchiveT18](https://www.softireland.com/family-stories-trisomy-18/archive-stories-t18/)
- [Danann’s Story](https://www.softireland.com/family-stories-trisomy-18/dananns-story/) - Danann’s Story By Maria Moynihan ********** “There is only one way to start this column. And that is to say that I have a son. His name is Danann Atlas Riordan. It’s a big name for a little boy. It’s the perfect name for our boy.” It’s just over two years since I sat at
- [Noah’s Story](https://www.softireland.com/family-stories-trisomy-18/noahs-story/) - Noah’s Story By Anita Conlon ********** Darren and I were overjoyed to discover I was pregnant with our second child. It had been a tough year as my mother was diagnosed with breast cancer, but when she got the all clear in April 2016 we decided to try for a sibling for our oldest
- [Mia’s Story](https://www.softireland.com/family-stories-trisomy-18/mias-story/) - Mia’s Story By Niamh Connolly-Coyne ********** I was so happy to be pregnant finally and to be pregnant on twins was so wonderful and very special. Our daughter Alice, who was four at the time, was also so excited about the arrival of two babies. It was such a special and exciting time. As
- [Noah and Ayla’s Story](https://www.softireland.com/family-stories-trisomy-18/noah-and-aylas-story/) - Noah and Ayla’s Story By Yvonne Gilbert ********************** Our journey started in October 2016 when I found out I was pregnant with my first child. I was just 19 and in my first year of college where I was studying social studies in social care. As any young girl would be,
- [Sarah Jane’s Story](https://www.softireland.com/family-stories-trisomy-18/8310-2/) - Sarah Jane’s Story By Michelle Newman Sarah Jane was born in March 2012 by caesarean section after a normal pregnancy. There were no alarm bells during the pregnancy to alert us to any trisomy diagnosis. Sarah Jane weighed in at a healthy 7lb 11oz, and after five days in hospital,
- [Nina’s Story](https://www.softireland.com/family-stories-trisomy-18/8315-2/) - Nina’s Story By Jan Foster We were thrilled when we found out, just before Christmas 2019, that I was expecting our third baby. Having had a previous miscarriage and experiencing bleeding throughout the first trimester, it was a very anxious time. It was only at around 18 weeks, not having
- [Lucy Anne’s Story](https://www.softireland.com/family-stories-trisomy-18/lucy-annes-story/) - Lucy Anne’s Story By Íde O’Sullivan Tiny footprints forever imprinted on our hearts In April 2012, our hopes and dreams of another little baby came through. Baby Lucy Anne Murphy crept quietly and gently into our lives on the evening of April 24th. Weighing just a tiny four pounds, she was quickly rushed
- [LilyMay's Story   ](https://www.softireland.com/family-stories-trisomy-18/lilymays-story/) - LilyMay's Story By Alma and Chris Stanley LilyMay was born 4lb 4ozs on the 7th May 2008 (the same day as her sister Jane's fifth birthday) by a section at 39 weeks. We had been waiting for this day for nine months. It had been a very hard nine months, as at 20
- [Megan](https://www.softireland.com/family-stories-trisomy-13/archivet13/megan/) - Margaret and Seamus Doherty Megan 12/09/87 – 17/04/00 Patau’s Syndrome - Translocation It’s now eight years since our only daughter and fifth child died. Our lives have entered a new phase, a more lonesome one as we no longer have a baby in the house and our sons have grown up and are moving on.
- [Shauna](https://www.softireland.com/family-stories-trisomy-13/archivet13/shauna/) - Jacqui and John McNally Shauna 26/05/05 (D) Patau’s Syndrome Early in spring 2005 listeners to Marian Finucane’s RTE radio programme heard the moving story of a couple who had just been told the baby they were expecting had Trisomy 13. This is their story: SHAUNA . . . Dawn of Light sent to us Within
- [Christina](https://www.softireland.com/family-stories-trisomy-13/archivet13/christina/) - Moira and Jim Martin Christina 01/02/99 – 10/05/99 Patau’s Syndrome Easter Sunday 1999: Baby Christina with her parents Moira and Jim Martin and sisters Laura 9 and Sarah 3 and brother Stephen 6 Three weeks premature, baby Christina Martin entered the world at 1.13pm on 1st February 1999 weighing 7lb 13oz. A beautiful chubby baby
- [Fundraising2018](https://www.softireland.com/fundraising/) - S.O.F.T Ireland Fundraising For fundraising and merchandising Email: soft.fundraising@gmail.com Registered Charity Number 10554 ******** ************************* #forkenny Memorial Run Shamrock Car & Machinery Club #forkenny Sun 5th Aug 2018 In aid of S.O.F.T ireland Many thanks to Ben and all the people that helped to organise this great event. SOFT appreciate
- [Peadar](https://www.softireland.com/family-stories-trisomy-13/archivet13/peadars-story/) - Peadar’s Story We found out in September 2009 that I was pregnant with our second baby. We were delighted. On the 11th December I went into the hospital for my first visit and scan. I was 17 weeks pregnant. The midwife began the scan and the first thing I saw was Peadar’s heart beating away!
- [Our Story](https://www.softireland.com/our-story/)
- [Family Stories Trisomy 13](https://www.softireland.com/family-stories-trisomy-13/) - Add your own Story
- [Why Our Baby?](https://www.softireland.com/why-our-baby/)
- [Fionn](https://www.softireland.com/family-stories-trisomy-13/archivet13/fionn/) - My first SOFT weekend - Moya Verling Our little boy Fionn was born sleeping on 4th May (my birthday!) in 2013. It is strange to think that 2 years have passed and yet sometimes it feels like a lifetime. Since getting the diagnosis in January 2013 life has evolved in many ways, we are
- [Tribute Book](https://www.softireland.com/tribute-book-2/) - S.O.F.T. Tribute Book S.O.FT. Ireland decided to dedicate a page to each child in a well bound and presented book. This was to be known as the Tribute Book. It was made in Dublin at the request of Noreen and Michael Mulhall. It is not restricted to deceased children but also dedicated to living children.
- [Cookie Policy](https://www.softireland.com/cookie-policy/) - About this cookie policy. This Cookie Policy explains what cookies are and how we use them. You should read this policy to understand what cookies are, how we use them, the types of cookies we use i.e, the information we collect using cookies and how that information is used and how to control the cookie
- [Fundraising2019](https://www.softireland.com/fundraisingnew/) - S.O.F.T Ireland Fundraising 2019 Beauty and the Beast The Lambeg Players Beauty and Beast went ahead in the Island Hall from Wed 02Jan19 to Sat 05Jan19 with “Sell Outs” and “Standing Ovations” every night. The Island Hall Theatre in Lagan Valley Island is a purpose built venue situated on an island between the Canal
- [Fundraising2020](https://www.softireland.com/fundraising2020/) - Fundraising 2020 Christmas Gift for SOFT’s Special Children This appeal has come to and end and the One4All vouchers have been ordered and sent out. Raising money to give SOFT’s Special Children a Gift for Christmas after a very difficult year. ***** SOFT Christmas and New Year Appeal SOFT Ireland is appealing
- [Fundraising2021](https://www.softireland.com/fundraising2021/) - Vhi Virtual Women’s Mini Marathon Sunday 19th Sep 2021 Thank You to Maria, Carol, Ann, Jane, Patricia and Paula for fundraising and raising awareness of SOFT in this years VHI Women’s Mini Marathon. We are very grateful of Maria for sharing precious stories of trisomy children while training. Ann Jane and Laura completed 10K on
- [Henry James’ Story](https://www.softireland.com/family-stories-trisomy-13/henry-james-story/) - Henry James’ Story By Carol Waites ************************* This is a story I have tried to write a number of times and have never really been able to put the pen to paper (or the fingers to keyboard). It is the story of my son, Henry James Waites. It’s a pretty long story
- [ArchiveT13](https://www.softireland.com/family-stories-trisomy-13/archivet13/)
- [Fionn’s Story](https://www.softireland.com/family-stories-trisomy-13/8050-2/) - Fionn’s Story By Moya Verling Power ********** Tom and I were a year married in October 2012 when we found out we were expecting our first baby for June 2013; we sailed through our 12 week scan, excited to see movement and a heartbeat and it was without doubt one of the happiest and
- [Oscar’s Story](https://www.softireland.com/family-stories-trisomy-13/8333-2/) - Oscar’s Story By Karen Fitzgerald Oscar Charlie Fitzgerald is five years old and was born in June 2016. Our little boy is the happiest little boy in Co Kildare, where we live. He is always smiling and laughing. He loves being hugged and gives the sloppiest of kisses. As soon as
- [Fundraising2022](https://www.softireland.com/fundraising2022/) - *** Dunderry Coffee Morning Update Took place on Sunday 11 December and started at 12 noon until late. It was a very busy day with a steady flow of people from the surrounding area. Many Thanks to Jackie and Ian O’Brien who were the hosts for this event, There was plenty of mulled wine, mince
- [Fundraising2023](https://www.softireland.com/fundraising2023/) - Vhi Women’s Mini Marathon Sun 4th June 23 Congratulations to Ann, Jane, Caroline, Paula and Natalia for finishing the VHI Women’s Mini marathon in Dublin on Sun 04 June 2023. That’s it for What’s Another Year for SOFT ! The weather was good and a BIG improvement on last year ! Thank you to all
- [FundraisingArchive](https://www.softireland.com/fundraisingarchive/) - FundraisingArchive Johnson & Johnson Donate to SOFT Vistakon Ireland Limerick a Johnson & Johnson Company donate to S.O.F.T. Ireland Greg Foley had nominated SOFT Ireland for a Charity that Vistakon Ireland a Johnson & Johnson Company could support and luckily SOFT were chosen. Johnson & Johnson in Limerick also ran a few events in house
- [Fundraising2024](https://www.softireland.com/fundraising2024/) - Dunderry Coffee Morning That time of year again…. Dunderry Coffee morning/Day was on Sunday (8th of December) ….there was mulled wine, mince pies, and other glorious festive calories. Raffle on the day, lashings of tea, coffee and plenty of craic. 12 pm til late. All were welcome. All proceeds in aid of SOFT Ireland and
- [ATest](https://www.softireland.com/atest/) - [vc_row][vc_column width=”1/2″][vc_column_text]OLD https://www.softireland.com/wp-content/uploads/Sia.mp3

## Candles

- [Solar Eclipse Wed 12 Aug 2026](https://www.softireland.com/candles/solar-eclipse-monday-8-april-2024/) - Solar Eclipse Wed 12 August 2026 Live Photos from Roestown Conservatory Eclipse visible over Meath Lunar eclipse occurs when the Earth moves between the Sun and the Moon On Wednesday 12 August we will have a solar eclipse. For about two hours just after 6pm, the Moon will move in front of the Sun
- [Buck Moons](https://www.softireland.com/candles/may-emerald-blue-moon/) - July Buck Moon The July full moon known as the Buck Moon occurs on 29 Jul 2026 at 3.30pm. Full moons occur when the moon is on the opposite side of the Sun from the Earth and is illuminated. Summertime Full Moons in the Northern Hemisphere tend to be low in the sky and
- [The Month of May](https://www.softireland.com/candles/the-month-of-may/) - The Month of May Lily of the Valley Throughout the world, May is celebrated as a month of resilience, renewal and tradition. May is a month of spring in the Northern Hemisphere, and autumn in the Southern Hemisphere The month of May is named after the Greek Goddess Maia, goddess of nature and growing plants
- [June 20 Summer Solstice](https://www.softireland.com/candles/june-21/) - Summer Solstice June 21 2026 is the summer solstice in the Northern Hemisphere and the winter solstice in the Southern Hemisphere. It has the most hours of daylight in the Northern Hemisphere and the fewest hours of daylight in the Southern Hemisphere. The Northern Hemisphere is tilted towards the sun and the sun sheds
- [July is Bereaved Parents Month](https://www.softireland.com/candles/july-is-bereaved-parents-month/) - July is Bereaved Parents Month Share your grief with your children Encourage them to share their feelings with you Express your love to your family Make time to listen and talk Answer questions with honesty Bereaved Parents Awareness Month is recognized every year in July. It is dedicated to raising awareness about the grief
- [Have a Happy Father's day](https://www.softireland.com/candles/7161/) - Happy Father's Day Sun 21 June 2026 Father’s Day falls and is celebrated on the third Sunday in June. It celebrates the impact fathers and father figures have on the lives of their children. Father's Day is for honouring fatherhood and paternal bonds, as well as the influence of fathers in society. It
- [Happy Easter Edwards & Pataus](https://www.softireland.com/candles/happy-easter/) - Easter Good Friday 03 April 2026 Easter Sunday 05 April 2026 Easter Monday 06 April 2026 Easter brings us hope, may it linger in our hearts forever. Easter is a time for thinking of those who are a special part of our lives... and have a special place in our hearts... Easter teaches you to
- [April](https://www.softireland.com/candles/april/) - Ode to the Daisy by Peter Burn Lovely, unassuming thing, Unto thee I praises sing; Regal greatness do I see In thy sweet humility April is derived from the latin word “aperit”, which means to open. It is considered that April is the month of the growing season and when trees and flowers
- [St Patrick's Day](https://www.softireland.com/candles/st-patricks-day/) - St Patrick's Day “Lá fhéile Pádraig sona dhuit!” Happy St Patricks day “Beannachtaí na Féile Pádraig dhuit!” St Patrick's Day blessings to you! “Go n-ardóidh an bóthar chun bualadh leat. Go mbeadh an ghaoth i gcónaí ar do chúl” May the road rise up to meet you. May the wind be always at your back!.
- [Mother's Day](https://www.softireland.com/candles/mothers-day/) - Happy Mother's Day Sunday 15 March 2026 Mother's Day is a celebration honoring the mother of the family as well as motherhood, maternal bonds, and the influence of mothers in society. It is celebrated on different days in many parts of the world, most commonly in March or May. Light a Candle on Mother's Day
- [National Trisomy Awareness Month - March](https://www.softireland.com/candles/national-trisomy-awareness-month-march/) - Trisomy Awareness Month Every March people come together to bring awareness and support to those with Trisomy conditions. While most people have 23 pairs of chromosomes, some have a condition that causes extra partial or full chromosomes in their cells. Those extra chromosomes can cause a range of health problems, learning difficulties
- [Trisomy 18 (Edward’s Syndrome) Awareness Day](https://www.softireland.com/candles/trisomy-18-edwards-syndrome-awareness-day/) - Trisomy 18 Awareness Day Wed 18 March 18 March is Trisomy 18 Awareness Day. It was chosen specifically because it represents 3 chromosomes on the 18th chromosome.One in 2500 pregnancies is not just a statistic it’s real.Trisomy 18, also known as Edwards Syndrome, is a life limiting chromosomal syndrome. Light a candle for all
- [Trisomy 13 (Patau’s Syndrome) Awareness Day](https://www.softireland.com/candles/trisomy-13-pataus-syndrome-awareness-day/) - Today is Trisomy 13 (Patau’s Syndrome) Awareness Day Friday 13 March 2026 Let us remember all our special T13 babies today and light a candle Why Our Baby? WHY TRISOMY 13 or 18? Babies have been born with Trisomy 13 and Trisomy 18 since the beginning of time, but it was only in 1960
- [International Women's Day 2026](https://www.softireland.com/candles/international-womens-day-2024/) - International Women's Day Sunday 08 Mar 2026 Imagine a world free of bias, stereotypes, and discrimination. A world that's diverse, equitable, and inclusive. A world where difference is valued and celebrated. Together we can forge women's equality. Collectively we call Inclusion. Celebrate women's achievement. Raise awareness about discrimination. Take action to drive gender parity. IWD
- [Yellow Daffodils of Spring](https://www.softireland.com/candles/yellow-daffodils-of-spring/) - Yellow Daffodils of Spring Candle Daffodils begin to flower in early Spring . They are one of Ireland’s favourite wildflowers, loved for the blanket of golden yellow they bring to the countryside.. They are one of Ireland’s favourite wildflowers and are perennial. Daffodils announce beginning of the spring and waking of nature. They are one
- [Light a Candle for Lent 18 March](https://www.softireland.com/candles/light-a-candle-for-lent/) - Pancake Tuesday 17th Febuary Pancake Tuesday (or Shrove Tuesday) is a popular tradition in Ireland coming from older Christian traditions of using up rich foods like eggs, milk, and butter before the Lenten fast. pancake Tuesday is Tues 17th February. A pancake is a flat made from a batter
- [Rare Disease Day 28 Feb!](https://www.softireland.com/candles/rare-disease-day/) - Rare Disease Day! Friday 28 February 2026 is Rare Disease Day. The worldwide rare disease community joins together to raise awareness of rare diseases and would include Trisomy 13 and Trisomy 18. On and around this day patient organisations from countries and regions all over the world hold awareness-raising events Rare Disease Day takes place
- [Valentine's Day Light a Candle 14 Feb!](https://www.softireland.com/candles/valentines-day-light-a-candle/) - Valentine's Day Light a Candle! Read ON.... Valentine's Day, also called Saint Valentine's Day or the Feast of Saint Valentine, is celebrated annually on February 14. The Feast day of Saint Valentine and the celebration of love and affection is celebrated by sending greeting cards and gifts, dating and church services. February 14 celebrates Valentine’s
- [Happy New Year](https://www.softireland.com/candles/happy-new-year-2/) - Light a Candle of Hope for the New Year ♥♥♥♥♥ Happy New Year to all our S.O.F.T. families in Ireland and elsewhere and all the best. Hope your New Year is filled with success, health, prosperity, happiness, brightness and hope so that darkness and sadness stay away. Happy New Year to all in S.O.F.T.
- [Storms in Feb?](https://www.softireland.com/candles/february-storms/) - February February symbolizes piety, humility, spiritual wisdom, and sincerity. From the Latin word Februarius, meaning “to purify“, February was known as the “Month of Purification” during ancient Roman times. It is a transitional time, finding itself just after a month of reflection and new year's resolutions. The word February comes from the Roman festival of
- [Angels Lucy Lucy LillyMay Conor etc](https://www.softireland.com/candles/our-beautiful-angel-lucy/) - Our Beautiful Angel Lucy Lucy, Not a day goes by when you're not in our thoughts or in our hearts. I wish I could have had the chance to hold and kiss you, To look into your eyes and tell you how beautiful you are & to tell you everything I am and ever will
- [Saint Brigid Day & Cross](https://www.softireland.com/candles/saint-brigids-cross/) - Saint Brigid’s Cross 1 Feb is Saint Brigid's Day Brigid's cross or Bridget's cross is a small cross woven from rushes and has four arms tied at the ends and a woven square in the middle. Brigid's crosses are associated with Saint Brigid, a patron saint of Ireland and of
- [Silent Night at Christmas](https://www.softireland.com/candles/silent-night/) - Silent Night Silent Night Carol connects and conveys hope for ordinary people and is sung out around the world as a message of peace. It is a lullaby for the Christ Child a song which evokes many emotions. Christmas and Silent Night is a time to remember our SOFT Children. Christmas Candle
- [A Christmas Candle](https://www.softireland.com/candles/a-christmas-candle/) - A Christmas Candle For All SOFT Children Christmas is an annual festival commemorating the birth of Jesus Christ, observed on December 25 as a religious celebration among billions of Christians around the world The traditional Christmas narrative, the Nativity of Jesus, portrayed in the New Testament says that Jesus was born in Bethlehem, as per
- [Halloween is coming](https://www.softireland.com/candles/halloween-is-coming/) - Halloween is Coming In Christianity November is devoted to the dead or the“Month of the Dead”. Celebrations occur November 1st All Saints' Day, a tribute to all saints, while November 2nd is All Souls' Day, dedicated to praying for the dead. All Souls Day (November 2) is a time when we particularly remember those
- [A Robin's Tale](https://www.softireland.com/candles/a-robins-tale/) - A Robin's Tale Finding the words to talk about the passing of a loved one ***** The well-known phrase, 'When robins appear, loved ones are near', alludes to the belief that the robin is a messenger. When robins are seen, some people take comfort that loved ones are at peace, and many
- [Stories](https://www.softireland.com/candles/stories/) - Maria Moynihan writes about Danann Atlas Riordan A wild and precious life ♥♥♥ Danann’s Story ♥♥♥ One of the very first articles I wrote as a newly qualified journalist in 2005 was about the support that SOFT Ireland gave the Rispin and Farrelly families when their sons, Niall and Patrick, were diagnosed with Edwards’
- [Trisomy 18 and Trisomy 13 Remembered in June](https://www.softireland.com/candles/june-birthstones/) - The month of June is associated with zodiac signs Gemini and Cancer. Roses, poppies, water lilies and Magnolia bloom in June. The Rose is the birth flower of June and your birth flower is a Rose If you were born in June, The one message that roses convey is of love and passion. June babies are
- [The Winter Solstice](https://www.softireland.com/candles/the-winter-solstice/) - Pagans gather at Newgrange! People gathered at Newgrange, Co Meath for the Winter Solstice - the astronomical phenomenon that marks the shortest day and the longest night of the year. The Winter Solstice Newgrange Winter Solstice Sat, Dec 21, 2024, 9:21 AM The Winter Solstice is an astronomical phenomenon that marks the shortest day and
- [Ode to Summer's End](https://www.softireland.com/candles/ode-to-end-of-summer/) - Ode to Summer's End To all S.O.F.T. Children William Shakespeare "Summer's lease hath all too short a date." August 31 is Summer's end Back to School! * Life is about 2 Paths, 2 Choices, 2 Consequnces and 2 Ends William Shakespeare Sonnet 18 Sonnet XVIII Shall I compare thee to a
- [The Tribute Book](https://www.softireland.com/candles/8814/) - S.O.F.T. Tribute Book S.O.FT. Ireland decided to dedicate a page to each child in a well bound and presented book. This was to be known as the Tribute Book. It was made in Dublin at the request of Noreen and Michael Mulhall. It is not restricted to deceased children but also dedicated to living children.

## Features

- [Baby Christopher: An avoidable medical tragedy](https://www.softireland.com/features/baby-christopher-an-avoidable-medical-tragedy/) - Baby Christopher: An avoidable medical tragedy Update Irish Examiner Dec 2025 "HSE CEO Bernard Gloster has apologised to Cork couple Rebecca and Pat Kiely for the death of their baby Christopher in 2019 and will shortly announce an external review into the tragedy." Update Parents of Baby Christopher talking to Brendan O'Connor on RTE1 Saturday
- [A Unique Christmas Experience](https://www.softireland.com/features/a-unique-christmas-experience/) - A Unique Christmas Experience By Molly O'Reilly Since 2007 the Christmas experience for our family and many other SOFT families has been unique. My sister Lucy was born October 25th 2007 diagnosed from birth with Edwards' Syndrome (Trisomy 18). She was a small baby with unique features. She was a lovable baby that everyone
- [Derry O'Brien 10th Anniversary](https://www.softireland.com/features/derry-obrien-10th-anniversary/) - Derry O Brien an Appreciation. Dunderry Drumbeat December 2013 https://dunderrydrumbeat.blogspot.com/2013/12/derry-o-brienan-appreciation.html?m=1 Dermot William O Brien,for this I believe was his birth name ,was one sound man.And I will tell you why. First he and his wife Mary (Newman )had three children ,one sounder than the other.Ian and Eunice we all know,love and respect,but there is another
- [Celtic Tenors Midsummer Concert](https://www.softireland.com/features/celtic-tenors-midsummer-concert/) - CelticTenors Facebook On Sat June 17th Deirdre Shannon, The Celtic Tenors with the St Colmcille Church Choir and Special Guests performed a very special Midsummer concert in aid of the Irish Cancer Society and Palliative Care. The Concert took take place in Saint Colmcille's Church Kells County Meath. An incredible night in Kells with Deirdre
- [SOFT Ireland Old Newsletters](https://www.softireland.com/features/soft-ireland-old-newsletters/) - S.O.F.T. Ireland FIRST NEWSLETTER 6thApril 1992 Hello Everyone "Enclosed is our first newsletter. The second one will be posted before out next meeting of the 16 May, and will include minutes of the last meeting in Dublin. Marie will take it that everyone has read these, and hopes the formal part of the meeting on
- [In the Middle of the Fields](https://www.softireland.com/features/in-the-middle-of-the-fields/) - 'In the Middle of the Fields' In Bective Mill By Mary Lavin (1912 – 1996) Story of young widow running a farm 'In The Middle of The Fields' by Mary Lavin was staged at Bective Mill right opposite Mary Lavin’s home place, on Friday 4th August 2023. Starring Kathy Rose O’Brien, Mark O’Regan, Seamus
- [MARION KING 1901 – 1963](https://www.softireland.com/features/9010/) - MARION KING 1901 – 1963 Marion King the artist died 60 years ago on 13 July 1963. She is buried in Mount Saint Joseph cemetery in Roscrea Co. Tipperary. Mount Saint Joseph Abbey is a monastery of the Trappist Order of Cistercians Monks. Her brother Jack was a Trappist monk
- [I am Miss D](https://www.softireland.com/features/i-am-miss-d/) - I am Miss D by Amy Dunne Author Amy Dunne, with Orla O’Donnell Publisher Gill Books In March of last year, Amy Dunne published a memoir called I Am Miss D about her experiences at the heart of one of the most highly emotive episodes that pitted this country’s abortion law –
- [S.O.F.T. Ireland Family Outing Gardening and Art (Feature)](https://www.softireland.com/features/8793/) - S.O.F.T. Ireland Family Outing Gardening and Art (Feature) Remembrance and Living Ceremony on Sunday Morning … Reading of Poems … Memento of terracotta flowerpots & saucers with begonia bulbs. These were painted with names added of special children. Children’s Art by children painting various SOFT themes sketches. “Gardening and
- [The History of S.O.F.T. Ireland](https://www.softireland.com/features/the-history-of-s-o-f-t-ireland/) - The History of S.O.F.T. Ireland "Why Our Baby?" 2022 Founder Members of S.O.F.T. Ireland Marie O’Conghaile Founder member and first chairperson 1991 – 1995 “Most people who have been in contact with S.O.F.T. have given back in some way and it is this energy that has made it a very special group.” Marie
- [Feature Posts](https://www.softireland.com/features/test-feature-post/) - What is a feature article? A feature article is an article written to give more depth to topical events, people or issues. A feature story include news features, profiles or spot features. A good feature article contextualizes the story so it's relatable and immediately relevant to the reader. So with the above in mind coming soon will

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- [News](https://www.softireland.com/category/news/)

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## Picture tag

- [Team oic](https://www.softireland.com/ngg_tag/team-oic/)
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