Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

SOFT News

SOFT News

Raising awareness of SOFT – Hospital program

Raising awareness of SOFT – Hospital program

Thank you to everyone who volunteered at our AGM 2016 to help Fiona & Patricia out with getting SOFT information into the hospitals.  We are always looks for people to help out with this as it is an important task to raise awareness that as we are a group dedicated to providing support, assistance & information to newly diagnosed families of children with Edwards’ or Patau’s syndrome. If you would be able to assist with getting some leaflets into your local maternity hospital please email soft.informationofficer@gmail.com

SOFT Ireland have made 2014 the year to re-introduce ourselves to the Maternity units across Ireland.  We put in place a team to work with John and Helen Shine.  John and Helen have put a lot of work into creating contacts within these departments and trying to keep information updated and keep our name to hand in time of need.  The team work as a local contact with hospital in your area, starting first with presenting laminated colour posters with SOFT contact details clearly visible to be positioned in staff/family rooms.  If you think you could spare a few moments to visit your local hospital please contact us with your name and location.

This is still ongoing with a dedicated Information officer Paudie Fitzgibbon and Team in 2019

soft.informationofficer@gmail.com