Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)



SOFT Oct Break & AGM and Family Outing 2017

SOFT Oct Break & AGM 2017

SOFT Go To Sheerwater

Fri. evening was a welcome space for families and new members to get acquainted.
Sat. had an opening ceremony, AGM and instead of a guest speaker we had a workshop on “The Future of SOFT” which was great idea and lots to follow up. That evening we had the Gala Dinner, Disco by CORKY, Raffle with donated prizes which went down well and most important the Fancy Dress for Kids was impressive.
Sun. had the closing ceremony which included the tribute book and tapestry. The centre piece for the weekend was the SOFT family tree. We also had poems and readings which were very touching and were well received. The balloon release was dedicated to those who are still with us and to those who are with us in spirit. The highlight was the celebration of Ellen’s 21st birthday.
We have new Chairperson Alex and Contact Co-Ordinator Helena with Jim as Treasurer and Antoinette as Secretary. Many thanks to Pat for leaving SOFT well positioned to go forward in the future and to Alma for taking on the magazine. A big Thank You to Ann and Jane for organising the weekend and having a smooth interaction with the Shearwater Hotel who were excellent.
Just a quick heads up and as regards the rest you will have to wait for the minutes!


Just a reminder for those interested in meeting up with other families at our SOFT AGM in October to try and book your accommodation ASAP as hotel only holding rooms until Friday.

Emails have been sent to SOFT members – please check your Spam/Junk folder.

Details below or if you have any questions please get in touch x


The Soft Committee is excited to bring this year’s SOFT October Break and AGM to the Shearwater Hotel, Ballinasloe, Co. Galway, October 13th – 15th.  The conference will include many of the annual traditions you’ve come to love and expect: A Welcome Evening; Lighting our SOFT Candle and Remembering our angels and surviving children with our SOFT Tree, Gala dinner complete with music and dancing, the popular Raffle and Balloon Release.

The conference is only a few weeks away and we encourage everyone to attend.  For our old friends, it’s a great way to catch up and renew friendships.  To our new family members, this is a great opportunity to meet with families and share experiences.  Full details on conference agenda and costs will be emailed to members shortly.  If you are not a SOFT member and would like to become a member please contact  If you would like more information about the conference, please contact


Annual Family Gathering June 10th 2017

We are delighted to welcome SOFT Members and families to our annual family gathering on SATURDAY JUNE 10TH from 12 noon in Newbridge House, Donabate, Co. Dublin. This is a wonderful opportunity for our members to catch up with each other and we extend this welcome to any new families who wish to join us on the day. Don’t forget to bring your picnic, packed lunch or BBQ and hopefully the weather will be fine for us. Committee members will be in red SOFT T-Shirts so we will be easy to spot for anyone new coming along. Check out the Newbridge house website for more information.