Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)


Fundraising Trisomy13 and Trisomy18


S.O.F.T Ireland

The Support Organisation for Trisomy 13 and Trisomy 18




Charity Reference Number (CHY) 10554

Registered Charity Number (RCN) 20027094


Donate to SOFT


We now have a DONATE button on our front page and on our website which makes it very easy for people to give us much needed funds. This is ideal for multiple small donations.

This will channel donations directly to S.O.F.T. Ireland, The Support Organisation for Trisomy13 and Trisomy18 in Ireland.

But if you do a normal fundraiser and want to get the proceeds to us then please just contact Also if anyone would like to fundraise for SOFT through a CAUSE with an online DONATE facility please contact us at


Fundraising Trisomy13 and Trisomy 18Contact the Fundraising Committee for merchandise and publicity.

Always keep track of monies received in & out.

Approach local businesses for help & support with spot prizes.

Talk to Gardai regarding raffles or selling tickets and permits.

Acknowledge a “Thank You” to everyone who helped & supported.


SOFT Fundraising Ideas for Trisomy13 and Trisomy18


European Refreshments Coca Cola Donation

Trisomy 18 Trisomy 13

Coca Cola

A big “Thank You” to European Refreshments a subsidiary of the Coca-Cola Company with proceeds of a RAFFLE  from the staff of European Refreshments (Coca-Cola) former colleagues of Geraldine Matthews (Ellen’s mother).



Newsletter Sponsorship Appeal

Our eagerly awaited Newsletter will posted to all members and will be dropping through your letterboxes in July. It’s in the new A5 style and full colour and will be filled with information, stories, outings, fundraising, photos and a great deal more. It’s a great way to communicate with our members. The feedback is very positive. A special thank you to all our Newsletter Sponsors last year.

ACE HIRE have kindly come on board this year





SOFT Ireland Trisomy 13 Trisomy18 VHI Mini MarathonVHI Women’s Mini Marathon postponed to 2021

Watch out for Virtual Event in Autumn

Calling all ladies in aid of SOFT for a great day out.

Walk, jog, run 10K in aid of S.O.F.T. It’s up to you but most walk!

Friends, relations and colleagues can participate for SOFT


**Postponement of the 2020 Vhi Women’s Mini Marathon**

“The Vhi Women’s Mini Marathon is a phenomenal event that promotes health and fitness as well as raising much needed funds for worthy causes nationwide. It is our intention to organise a virtual event that can support these goals,” in the Autumn.

On the advice of the relevant statutory authorities, the 2020 Vhi Women’s Mini Marathon, scheduled to take place on Sunday May 31st, will be postponed. We understand this is disappointing but it is in the best interest of the community.

This decision has been taken in light of the growing threat presented by COVID-19.

The event will be re-scheduled to 2021. We will confirm the date in the coming days. 

The team at Vhi Women’s Mini Marathon will continue to liaise closely with the relevant statutory authorities regarding the staging of the event and will update all of our participants in the near future.

The health and safety of our participants is our priority, and we would like to thank you for your support and patience at this time.



Team SOFT Ireland Trisomy13 Trisomy18 VHI Mini Marathon

VHI Women’s Mini Marathon

Postponed until 2021

Virtual marathon to be announced for Autumn

SOFT the Support Oganisation for Trisomy 13 and Trisomy 18 are on the VHI Charity List



Walk, jog or run 10K in aid of S.O.F.T. on Bank Holiday Weekend. It’s up to you but most walk it!  Friends, relations and colleagues can participate in the Mini Marathon for SOFT. This is the largest all women’s event of its kind in the world! There is a wonderful atmosphere and it’s a great experience.

It will be a great day out and SOFT will benefit. We are on their Charity List.

Entries (€ 25.00). Signup at

You can see fitness plans etc. on the website.

Vhi Health will accept Vhi Snap&Send as well as paper claims for €25 entry fee.with no excess.

The race starts on Fitzwilliam Street Upper at 2pm and finishes on Baggot Street Lower in Dublin.

Otherwise your Race Number must be collected at one of the official number collection venues. We in SOFT can help if you have difficulty. You can get your race number posted to you but this postal option will close on May 3rd or sooner.

You can prepay on entry for medal engraving online with your entry. By prepaying, you will get a reduced rate of €6.50. The cost on race day is €8.

NB Let SOFT know that you have entered by emailing

We will send a T- shirt, Sponsorship card and merchandise to you. We will all meet up at the Davenport Hotel for a photo before the race.

Feel free to circulate to friends, relations and colleagues etc.



Sophie Belle Park Cycle for SOFT

Congratulations Sophie Belle and Nicola

Have completed the Park Cycle and met their 100Km Target!


Sophie Belle Park Cycle for SOFT

On a h/ppy , positive note,  we wanted to tell  you that Sophie-Belle came up with an idea she would like to raise some money for SOFT to make something good from this lockdown situation .. 

“So many charities must be feeling the pinch, and I’m sure SOFT is no different”

This was a great initiative by one of our younger members

” Sophie-Belle and I are so grateful for all the wonderfully kind, and  generous support for her Park Cycle.

We are blown away with the total raised




Barrtestown and SOFT


Fundraiser for

*Barretstown and SOFT Ireland*




River Island in Mahon Point Cork are had a fundraiser for SOFT Ireland and Barretstown

Team River Island Mahon Point Cork came together to raise money for our chosen charities

Our team have chosen charities Barretstown and SOFT Ireland that are close to our hearts. …

Congratulations to Team River Island Mahon Point


Coffee Morning Castletroy Park Hotel

Castrletroy ParK Hotel were delighted to be hosting a coffee morning for Soft Ireland in their Garden Room the morning of Tuesday 18 Feb 2020.They were looking forward to hosting our annual Soft Ireland coffee morning again! Thank you all for popping in and supporting this worthy cause!

SOFT Ireland The Support Organisation for Trisomy13 and Trisomy 18 fundraiser in Castletroy Hotel

A coffee morning was hosted by Castletroy Park Hotel in aid of SOFT Tuesday 18 Feb 2020. This was held in the Garden Room in Limerick. Thank you to the Castletroy Park Hotel management and staff for their support in hosting this coffee morning and to Nicola Fagan and Michael Fagan from SOFT for making it happen. Thanks so much to everyone for their generosity at Valentine’s!



Hannover Re (Irleland) DAC Cake Sale




Hannover Re (Ireland) DAC hosted a Bake Sale on 29 Nov 2019 and were certainly happy to be in a position to support SOFT. They made a donation to S.O.F.T. Ireland after it. Knowing of the great work that the SOFT charitable organisation does they were very pleased to be supporting these efforts

Many thanks to Hannover Re Staff and Orla McManamly. Her parents Noel and Sheila were involved with S.O.F.T. Ireland in the past following the loss of their daughter Dara with Trisomy 13 (Patau’s syndrome ).





The Stables Club



Founded in 1987, The Stables Club has grown to be the largest club on the University of Limerick campus. In that time, the Stables has become the focal point of campus social life. Many thanks for their donation to S.O.F.T. Ireland in early 2020.


Paddocks Restaurant



The Paddocks is a riendly restaurant located in the student centre on the campus of University of Limerick. Many thanks for their donation to S.O.F.T. Ireland in early 2020.




Stabannon Ladies Gaa



Stabannon Ladies GAA welcomed 12 teams to their club this in 2019 for the fourth annual Nicola Barry Memorial Tournament held in honour of the late Stabannon goalkeeper. Many thanks to Stamullen Ladies GAA for making a donation to SOFT.


Dee Vintage Club




Dee Vintage and Classic Club hosted their annual road (tractor) run in 2019 leaving from McGahons pub in Ardee County Louth. Gary Miles of Dee Vintage Club presented a cheque to Terry and Geraldine Matthews of S.O.F.T.  Ireland. Many thanks to Dee Vintage Club for making a donation to SOFT.


Support Your Credit Unions

The Mission of a Credit Union is to promote the financial wellbeing of its members. Whatever you have your heart set on – from a new car to home improvements, or from a holiday to an educational loan or savings the Credit Union is there for you.

Credit unions like many other financial institutions have embraced social responsibility as an important strategic imperative. They care about and consider themselves as part of the community.

With this in mind we would like to thank some credit unions for supporting S.O.F.T. Ireland in their charitable work. These credit unions are Credit Union Plus Dunshaughlin, Athboy Credit Union, Altura Credit Union Gorey and Comhar Linn Credit Union Dublin

Credit Union Plus Dunshaughlin

Athboy Credit Union

Altura Credit Union Gorey

Comhar Linn Credit Union Dublin