Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

Welcome To S.O.F.T. Ireland

Support Organisation for Trisomy 13/18

 S.O.F.T. Ireland is a voluntary group dedicated to providing support, assistance and information for families of children diagnosed and born with Patau’s Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18). Babies born with these syndromes often have serious life-threatening conditions with development delay and a limited life expectancy. Support is provided during pre-natal diagnosis, during the child’s life and after the child’s passing

S.O.F.T. Ireland provides support by :

  • Providing information e.g. “Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnostic Support and Information Leaflet” and “Why Our Baby?” Book
  • Putting families in contact with one another
  • Funding home and family support
  • Funding respite assistance
  • Funding bereavement counselling
  • Publishing regular newsletters
  • Organising family gatherings and arranging professional speakers
  • Raising funds through various events
  • Linking with S.O.F.T. organisations worldwide

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Trisomy 18 Stories

Trisomy 13 Stories

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