SOFT Ireland - Support for Trisomy 13 & Trisomy 18 Patau\'s & Edwards\' Syndrome

TEL: 1800 213 218

Welcome To S.O.F.T. Ireland

Support Organisation for Trisomy 13/18

S.O.F.T. Ireland is a voluntary group dedicated to providing support, assistance and information for families of children diagnosed and born with Patau’s Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18). Babies born with these syndromes often have serious life-threatening conditions with development delay and a limited life expectancy. Support is provided during pre-natal diagnosis, during the child’s life and after the child’s passing

S.O.F.T. Ireland provides support by :

Providing information e.g. “Patau’s Syndrome T13 Edwards’ Syndrome T18 Pre-Natal Diagnostic Support and Information Leaflet” and “Why Our Baby?” Book
Putting families in contact with one another
Funding home and family support
Funding respite assistance
Funding bereavement counselling
Publishing regular newsletters
Organising family gatherings and arranging professional speakers
Raising funds through various events
Linking with S.O.F.T. organisations worldwide