Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)


Links to SOFT Websites of interest

These links are for information only and are not an endorsement of any group.
S.O.F.T Ireland does not necessarily endorse the content of these sites.



SOFT Australia

Trisomy On-Line

Chromosome 18 Registry and Research Society

SOFT UK Booklets

Carmichael Centre for Voluntary Groups

Every Life Counts

A place where parents of children who were diagnosed with a terminal condition can share….

Feileacain –  Stillbirth and Neonatal Death Association of Ireland

Féileacáin aims to offer support to anyone affected by the death of a baby during pregnancy…

Anam Cara

Provides support services for bereaved parents

A Little LIfetime Foundation

A Little Lifetime Foundation is the voice for bereaved parents and their families across Ireland…

The Irish Childhood Bereavement Network

The Irish Childhood Bereavement Network (ICBN) is  a hub for those working with bereaved children…

Jack and Jill Foundation

LauraLynn Children’s Hospice

Laura Lynn is a hospice for children with life-limiting conditions that provides palliative care and support…. 
Unique – Rare Chromosome Disorder Support Group
Enable Ireland
Now I Lay me Down To Sleep (NILMDTS)
nowilaymedown to sleep


Social Welfare Information

Department of Social and Family Affairs (DFSCA)
National Disability Authority
Citizens Information
Government of Ireland
Department for Social Development in Northern Ireland

Other Useful Links

Disabled Drivers Association of Ireland
Irish Life