Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

Links

Links to other websites

These links are for information only and are not an endorsement of any group.We have no control over the nature, content and availability of those sites. S.O.F.T. Ireland does not necessarily imply a recommendation or endorse the content of these sites.

HSE COVID-19 Information

HSE COVID-19 “Cocooning” information for over 70’s

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SOFT (UK)

SOFT UK provides information and support to families affected by Trisomy 13 (Patau’s Syndrome) and Trisomy 18 (Edwards’ Syndrome)

SOFT UK Booklets

Your Unborn Baby was written by SOFT UK to provide a basis for discussions between you and your medical advisers

SOFT (USA)

SOFT inspires hope and respects all on theirTrisomy journey

SOFT Australia

The birth of a healthy baby is one of the most exciting and eagerly anticipated events a family can experience

Trisomy On-Line

Trisomy Online is a free email based support group that was formed in 1997 for families and professionals

Chromosome 18 Registry and Research Society

Chromosome 18’s mission is to help individuals with chromosome 18 abnormalities

Carmichael Centre for Voluntary Groups

Carmichael is the leading specialist training and support body for nonprofits in Ireland

Every Life Counts

A place where parents of children who were diagnosed with a terminal condition can share….

Feileacain

Stillbirth and Neonatal Death Association of Ireland aims to offer support to anyone affected by the death of a baby during pregnancy…

Anam Cara

Provides support services for bereaved parents. Anam Cara Parent Bereavement understands we don’t live in an ideal world, we live in a world after our precious children have died before their time.

A Little LIfetime Foundation

A Little Lifetime Foundation is the voice for bereaved parents and their families across Ireland…

The Irish Childhood Bereavement Network

The Irish Childhood Bereavement Network (ICBN) is  a hub for those working with bereaved children…

Jack and Jill Foundation

LauraLynn Children’s Hospice

Laura Lynn is a hospice for children with life-limiting conditions that provides palliative care and support....

Unique – Rare Chromosome Disorder Support Group

We aim to act as an international group, supporting, informing and networking with anyone affected by a rare chromosome disorder 

Now I Lay me Down To Sleep (NILMDTS)

Affiliated photographers in Ireland have been instrumental in providing this most precious service – the gift of professional portraits to grieving families.

Rare Diseases Ireland

Rare Diseases Ireland (RDI) is the National Alliance for Rare Diseases in Ireland and its objective is to represent the voice of those who have or are at risk of developing a rare disease.

 

Welfare Information

Department of Social and Family Affairs (DFSCA)
National Disability Authority
Citizens Information
Government of Ireland
Department for Social Development in Northern Ireland
Revenue
HSE

Other Useful Links

Disabled Drivers Association of Ireland
Enable Ireland
VHI Health
Laya Health
Irish Life Health