Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

Links

Links to SOFT Websites of interest

These links are for information only and are not an endorsement of any group.
S.O.F.T Ireland does not necessarily endorse the content of these sites.

SOFT (USA)
www.trisomy.org

SOFT (UK)
www.soft.org.uk

SOFT Australia
softaustralia

Trisomy On-Line
www.trisomyonline.org

Chromosome 18 Registry and Research Society
www.chromosome18.org

SOFT UK Booklets

http://www.soft.org.uk/booklets

Carmichael Centre for Voluntary Groups
www.carmichaelcentre.ie

Every Life Counts

A place where parents of children who were diagnosed with a terminal condition can share….
www.everylifecounts.ie

Feileacain –  Stillbirth and Neonatal Death Association of Ireland

Féileacáin aims to offer support to anyone affected by the death of a baby during pregnancy…
www.feileacain.ie

Anam Cara

Provides support services for bereaved parents
www.anamcara.ie

A Little LIfetime Foundation

A Little Lifetime Foundation is the voice for bereaved parents and their families across Ireland…
www.alittlelifetime.ie

The Irish Childhood Bereavement Network

The Irish Childhood Bereavement Network (ICBN) is  a hub for those working with bereaved children…
www.childhoodbereavement.ie/

Jack and Jill Foundation

www.jackandjill.ie

LauraLynn Children’s Hospice

Laura Lynn is a hospice for children with life-limiting conditions that provides palliative care and support….
www.lauralynn.ie 
Unique – Rare Chromosome Disorder Support Group
www.rarechromo.org
Enable Ireland
www.enableireland.ie
Now I Lay me Down To Sleep (NILMDTS)
nowilaymedown to sleep

 

Social Welfare Information

Department of Social and Family Affairs (DFSCA)
www.welfare.ie
National Disability Authority
www.nda.ie
Citizens Information
www.citizensinformation.ie
Government of Ireland
http://www.irlgov.ie/
Department for Social Development in Northern Ireland
www.dsdni.gov.uk
Revenue
www.revenue.ie

Other Useful Links

Disabled Drivers Association of Ireland
www.ddai.ie
VHI
www.vhi.ie
Laya
www.layahealthcare.ie
Irish Life
www.irishlife health.ie