Expression of Interest
Rare Disease Patient Forum to assist in the development of new National Rare Disease Strategy for Ireland
Expressions of interest (EOI) are being sought from people living with rare diseases, their family members and the wider rare disease community to contribute to and support development of the new National Rare Disease Strategy for Ireland.
You may complete the EOI online or download the form to complete off-line and email to rare_diseases_long_covid@
Expressions of interest will be accepted until 5pm on Monday, 8 January 2024. There will also be further opportunities to contribute and get involved subsequent to this date however we expect to populate the Steering Group and RD Patient Forum from submissions received by this date.
If you require assistance to complete the Expression of Interest please contact please contact rare_diseases_long_
The Expression of Interest application form is supported by the Department of Health. The Minister and the Chief Medical Officer have issued a statement supporting this initiative.