Caring for Special Babies & Children/Adults
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

SOFT News

SOFT News

Trisomy Awareness Month of March

Trisomy 13 Trisomy 18

Support SOFT Ireland now

 

Trisomy 18 (Edwards’ Syndrome) Awareness Day

Trisomy 18

March is Trisomy Awareness month.

Saturday 18 March is Trisomy 18 (Edwards’ Syndrome) Awareness Day

Saturday 18 March 2023 is Trisomy 18 Awareness Day. It was chosen specifically because it represents 3 chromosomes on the 18th chromosome. One in 6000 pregnancies is not just a statistic it’s real. Trisomy 18, also known as Edwards’ Syndrome, is a life limiting chromosomal syndrome.

Trisomy 13 (Patau’s Syndrome) Awareness Day

Trisomy 13

Trisomy 13

Monday 13 March 2023

Let us remember all our special T13 babies today

 

Trisomy 20 Awareness Day 

 

Trisomy 20

Awareness Day

Monday 20 March

 

Chromosome 20 trisomy, (also called trisomy 20) is a condition in which a fetus or individual has an extra full or partial copy of chromosome 20 in some or all of of his/her cells. The presence of an extra copy of only part of chromosome 20 is called partial trisomy 20; and an extra copy of chromosome 20 in only some of a person’s cells is called mosaic trisomy 20.

Trisomy 21 (Down Syndrome) Awareness Day

Trisomy 21 (Down Syndrome) Awareness Day

March is Trisomy Awareness month.

Tuesday 21 March is Trisomy 21 (Down Syndrome) Awareness Day

 

 

 

Every March people come together to bring awareness and support to those with Trisomy conditions. While most people have 23 pairs of chromosomes, some have a condition that causes extra partial or full chromosomes in their cells. Those extra chromosomes can cause a range of health problems, learning difficulties as well as delays in physical development. Trisomy Awareness Month, observed in March raises awareness about trisomy conditions and the challenges these conditions may pose to individuals and families,

Show your support with a small donation to our charity during Trisomy Awareness Month of March 2023 to help us continue our work. Some businesses are looking at how they can make a positive social impact. Well here is an opportunity.

Support Organisation For Trisomy (S.O.F.T.), a national registered charity, is a voluntary group dedicated to providing support, assistance and information to families of children diagnosed and born with Patau’s Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18).

Support is provided during pre-natal diagnosis, during the child’s life and after the child’s passing.

Fundraising and donations are our main source of income and that is very challenging in these difficult times

 

Krissi Hope, living with Trisomy 13. Fight song

Lyrics Rachel Platten Fight Song
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Losing friends and I’m chasing sleep
Everybody’s worried about me
In too deep
Say I’m in too deep (in too deep)
And it’s been two years I miss my home
But there’s a fire burning in my bones
Still believe
Yeah, I still believe
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
A lot of fight left in me
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong (I’ll be strong)
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Know I’ve still got a lot of fight left in me
Source: LyricFind
Songwriters: Dave Bassett / Rachel Platten
Fight Song lyrics © Sony/ATV Music Publishing LLC