Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)

SOFT News

SOFT News

Support Trisomy Awareness Month

Trisomy 13 Trisomy 18

Support SOFT Ireland

This campaign is now PAUSED

Every March people come together to bring awareness and support to those with Trisomy conditions. While most people have 23 pairs of chromosomes, some have a condition that causes extra partial or full chromosomes in their cells. Those extra chromosomes can cause a range of health problems, learning difficulties as well as delays in physical development. Trisomy Awareness Month, observed in March raises awareness about trisomy conditions and the challenges these conditions may pose to individuals and families,

SOFT Ireland is appealing to the General Public for a small donation to our charity during Trisomy Awareness Month of March 2021 to help us continue our work.

Support Organisation For Trisomy (S.O.F.T.), a national registered charity, is a voluntary group dedicated to providing support, assistance and information to families of children diagnosed and born with Patau’s Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18).

Support is provided during pre-natal diagnosis, during the child’s life and after the child’s passing.

Fundraising and donations are our main source of income and that is very challenging in these difficult times

Toy Show Appeal Disappointment

We are extremely disappointed we cannot benefit from the Toy Show Appeal as our annual income is less than €500,000!!
Children’s charities all over Ireland will echo our sentiments as we were all looking forward to funds in these challenging time
 

Trisomy 13 (Patau’s Syndrome) Awareness Day

Trisomy 13

Trisomy 13

 Trisomy 13 (Patau’s Syndrome) Awareness Day

Saturday 13 March 2020

Let us remember all our special T13 babies today

 

Trisomy 18 (Edwards’ Syndrome) Awareness Day

March is Trisomy Awareness month.

Today Thurs 18 March is Trisomy 18 (Edwards’ Syndrome) Awareness Day

Thursday 18 March 2021 is Trisomy 18 Awareness Day. It was chosen specifically because it represents 3 chromosomes on the 18th chromosome.One in 2500 pregnancies is not just a statistic it’s real.Trisomy 18, also known as Edwards’ Syndrome, is a life limiting chromosomal syndrome.

 

 

Trisomy 21

Trisomy 21 (Down Syndrome) Awareness Day

March is Trisomy Awareness month.

Today Sunday 21 March is Trisomy 21 (Down Syndrome) Awareness Day

 

 

Trisomy 13 and Trisomy 18

Appeal to the General Public

March 2021

 

Krissi Hope, living with Trisomy 13. Fight song

Lyrics Rachel Platten Fight Song
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Losing friends and I’m chasing sleep
Everybody’s worried about me
In too deep
Say I’m in too deep (in too deep)
And it’s been two years I miss my home
But there’s a fire burning in my bones
Still believe
Yeah, I still believe
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
A lot of fight left in me
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong (I’ll be strong)
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Know I’ve still got a lot of fight left in me
Source: LyricFind
Songwriters: Dave Bassett / Rachel Platten
Fight Song lyrics © Sony/ATV Music Publishing LLC