Support Trisomy Awareness Month
Support SOFT Ireland
This campaign is now PAUSED
Every March people come together to bring awareness and support to those with Trisomy conditions. While most people have 23 pairs of chromosomes, some have a condition that causes extra partial or full chromosomes in their cells. Those extra chromosomes can cause a range of health problems, learning difficulties as well as delays in physical development. Trisomy Awareness Month, observed in March raises awareness about trisomy conditions and the challenges these conditions may pose to individuals and families,
SOFT Ireland is appealing to the General Public for a small donation to our charity during Trisomy Awareness Month of March 2021 to help us continue our work.
Support Organisation For Trisomy (S.O.F.T.), a national registered charity, is a voluntary group dedicated to providing support, assistance and information to families of children diagnosed and born with Patau’s Syndrome (Trisomy 13) and Edwards’ Syndrome (Trisomy 18).
Support is provided during pre-natal diagnosis, during the child’s life and after the child’s passing.
Fundraising and donations are our main source of income and that is very challenging in these difficult times
Toy Show Appeal Disappointment
We are extremely disappointed we cannot benefit from the Toy Show Appeal as our annual income is less than €500,000!!
Children’s charities all over Ireland will echo our sentiments as we were all looking forward to funds in these challenging time
Trisomy 13 (Patau’s Syndrome) Awareness Day
Trisomy 13
Trisomy 13 (Patau’s Syndrome) Awareness Day
Saturday 13 March 2020
Let us remember all our special T13 babies today
Trisomy 18 (Edwards’ Syndrome) Awareness Day
March is Trisomy Awareness month.
Today Thurs 18 March is Trisomy 18 (Edwards’ Syndrome) Awareness Day
Thursday 18 March 2021 is Trisomy 18 Awareness Day. It was chosen specifically because it represents 3 chromosomes on the 18th chromosome.One in 2500 pregnancies is not just a statistic it’s real.Trisomy 18, also known as Edwards’ Syndrome, is a life limiting chromosomal syndrome.
Trisomy 21
Trisomy 21 (Down Syndrome) Awareness Day
March is Trisomy Awareness month.
Today Sunday 21 March is Trisomy 21 (Down Syndrome) Awareness Day
Watch
Krissi Hope, living with Trisomy 13. Fight song
Baby Noah
Now I Lay Me Down to Sleep (NILMDTS) – Trisomy 18 & 13
Trisomy 13 and Trisomy 18
Appeal to the General Public
March 2021
Krissi Hope, living with Trisomy 13. Fight song
Lyrics Rachel Platten Fight Song
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Losing friends and I’m chasing sleep
Everybody’s worried about me
In too deep
Say I’m in too deep (in too deep)
And it’s been two years I miss my home
But there’s a fire burning in my bones
Still believe
Yeah, I still believe
Everybody’s worried about me
In too deep
Say I’m in too deep (in too deep)
And it’s been two years I miss my home
But there’s a fire burning in my bones
Still believe
Yeah, I still believe
And all those things I didn’t say
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
Wrecking balls inside my brain
I will scream them loud tonight
Can you hear my voice this time?
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
A lot of fight left in me
Like a small boat
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
On the ocean
Sending big waves
Into motion
Like how a single word
Can make a heart open
I might only have one match
But I can make an explosion
This is my fight song
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong (I’ll be strong)
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Take back my life song
Prove I’m alright song
My power’s turned on
Starting right now I’ll be strong (I’ll be strong)
I’ll play my fight song
And I don’t really care if nobody else believes
‘Cause I’ve still got a lot of fight left in me
Know I’ve still got a lot of fight left in me
Source: LyricFind
Songwriters: Dave Bassett / Rachel Platten
Fight Song lyrics © Sony/ATV Music Publishing LLC
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