Caring For Special Babies & Children
Support Organisation for Trisomy 13/18 - (Patau's/Edward's Syndrome)


Hell & Back! Killruddery

I want to give a big shout out to thank all the ladies and gentlemen that entered, endured and successfully completed the gruelling 12 km Hell&Back challenge on Sunday the 14th of June 2015 in Killruddery Co. Wicklow. It was the toughest Hell&Back challenge to date but Team Soft Ireland...
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Every Life Counts campaign

SOFT Irl are supporting the Every Life Counts campaign to stop the phrase “incompatible with life” being used as a medical reference or diagnoses for critically ill babies. Researchers and families (including some of our SOFT members) will launch the ‘Geneva Declaration on Perinatal Care’ at the United Nations in...
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We have found a new administrator for our Facebook page.  Many thanks to Moya Verling for taking on the role.  We look forward to meeting and chatting with you there.  

Charity Vintage Tea Rooms Sat 12 July

Step back in time Saturday 12th July in the Charity Vintage Tea Rooms in St Marys Church of Ireland, Jacknell St, Dungarvan, Co. Waterford. Enjoy homemade cakes & cucumber sandwiches on pretty cake stands, & relax to 40’s music. All proceeds go to SOFT Ireland – Support Organisisation for Edwards’ & Patau’s Syndrome....
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Hospital Project

SOFT Ireland have made this year the year to re-introduce ourselves to the Maternity units across Ireland.  We plan to put in place a team to work with John and Helen Shine.  John and Helen have put a lot of work into creating contacts within these departments and trying to...
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Family Day – Sat May 3rd Limerick

  Family fun day at the University of Limerick Campus, fun for all ages, something old and new.  Outline of Events for Day Opening entertainment at 12 noon by local Spoken Dancers 12.30 – 14.00 – Leon the Magician for younger members activities also organised for teens 14.00 – 15.30...
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PHASE ONE – S.OF.T. Tapestry

This is Phase One of tapestry – this phase is Pateau’s babies. Phase Two will be Edward’s. If you would like to have your child included contact Alma Stanley with details. €35.00 for square, please include babies date of birth and date of passing and name as you would like...
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Book to Raise Funds for SOFT

Soft as Rainbow’ – A Book of Poetry and Stories by Joe Healy in memory of his daughter Niamh.  Book available to buy from O’Mahonys’ book store, Limerick, 061418155  priced at €12.00. All proceeds to go to SOFT Ireland Our thanks to Joe and Geraldine Healy, we wish you every...
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Charity Cycle July 13th

There will be a charity cycle from Dublin to Wexford on Saturday July 13th in support of Soft Ireland and Please email Ned at or call 0863821033 for more details.